Which routes should psychopharmacological treatment research take in schizophrenia?

K. Wiedemann, M. Friede, C. von der Goltz
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Abstract

There is evidence that suggests that families often play an important role in the recovery of people with mental health problems. (3) and that family interventions can have a positive impact on service user outcomes, for example, rehospitalisation rates and adherence with medication (1, 4). Family members and supporters report poor access to general information about mental ill health and limited information regarding the wellbeing and treatment of their loved one (3). They believe that their voice often goes unheard even when the actions of the health services directly impacts on the family and supporter. This is particularly apparent at critical times such as admission and discharge from hospital. In addition, the trauma and challenge of supporting a person who experiences mental ill health can often be detrimental to the wellbeing and mental health of the individual supporter and the wider family for whom there may be limited information or supports. All professionals working in mental health services are bound by law and their professional codes of practice to maintain strict confidentiality between themselves and those who use their service. The rights of the individual to his or her privacy and integrity is both recognised and respected within this document. Families and supporters do not want or need to know personal details. They are often the primary supporter of a loved one, particularly at times of crisis and they want and need to know what they can do to support their family member’s recovery in a constructive way. There is growing recognition of the impact of supporting a person with mental illness on the family and supporters (3), and the need for a response that is inclusive of everyone’s needs. The importance of the support offered by the family/supporter and their need for support to be able to perform this role is also recognised within this document. In summary research on the needs of families should focus on the key themes outlined in this document. Such research should be participative and designed to inform improved service provision from the perspective of family members.
精神分裂症的精神药理学治疗研究应采取哪些途径?
有证据表明,家庭在有精神健康问题的人的康复中往往起着重要作用。(3),家庭干预可以对服务使用者的结果产生积极影响,例如,再住院率和药物依从性(1,4)。家庭成员和支持者报告说,他们很难获得有关精神疾病的一般信息,关于他们所爱的人的福祉和治疗的信息也有限(3)。他们认为,即使卫生服务的行动直接影响到家庭和支持者,他们的声音也常常被忽视。这在入院和出院等关键时刻尤为明显。此外,支助患有精神疾病的人所带来的创伤和挑战,往往会损害支助者个人和更广泛家庭的福祉和精神健康,因为他们获得的信息或支助可能有限。所有从事精神健康服务的专业人员都受到法律及其专业业务守则的约束,必须在他们自己与使用其服务的人之间严格保密。本文件承认和尊重个人的私隐权和操守权。家属和支持者不希望也不需要知道个人细节。他们通常是亲人的主要支持者,尤其是在危机时刻,他们想要也需要知道自己能做些什么,以建设性的方式支持家人的康复。越来越多的人认识到支持精神疾病患者对家庭和支持者的影响(3),以及需要一个包括每个人需求的回应。家庭/支持者提供的支持的重要性,以及他们需要支持才能履行这一角色,也在本文件中得到认可。总之,关于家庭需要的研究应集中于本文件概述的关键主题。这种研究应该是参与性的,旨在从家庭成员的角度为改进服务的提供提供信息。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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