Establishing a fertility preservation database: no time like the present

Abstract

Fertility preservation (FP) was developed with the explicit purpose of helping young women and men overcome complications of infertility associated with cancer-related treatments. Currently, no databases in the USA follow cancer or noncancer patients who undergo FP. Hence, the number and demographics of women and men who seek these services, as well as the efficacy, benefits, risks, success rates and quality of care of FP are unknown. Two feasibility studies on young women seeking FP in southern California are discussed. In addition, barriers, funding, a needs assessment, and approaches to establishing and evaluating a database are presented. A FP database would provide oncologists, reproductive endocrinologists and other medical specialists with an invaluable resource for evidence-based decisions; a foundation of knowledge that could alleviate patients’ fears so that they can make informed decisions; public health surveillance; and research opportunities.