Quem salva quem? Saviour siblings e seus aspectos bioéticos

I. D. M. Leandro, T. A. D. Silva, F. F. L. Barbosa, A. Barros, Monaliza Mendes Carvalho da Cruz, Luisa De Oliveira Garcia, Robertha Lima Saab, Anderson Luis Moreira Daher, Ana Cláudia Soares Junqueira, Felipe Zingoni Peçanha, Alexandre Basilio Pillar, Eduardo Rosa Alves Do Lago, Sérgio Zaidhaft
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Abstract

INTRODUCTION: The idea of the article arose during a course in which students were organized in groups to discuss a bioethics subject and the subject chosen was "saviour siblings". “Saviour sibling” is a child conceived in the hope of being genetically compatible with an older brother who has some pathology whose treatment consists of the donation of tissues. OBJECTIVE: To debate the conception of saviour siblings and the delicacy and complexity of the theme from a bioethical perspective. METHODOLOGY: Literature review carried out in August 2019, in the PubMed database, using the keyword “saviour siblings”. The material obtained was used for discussion and elaboration of a clinical case. RESULTS: 40 articles were found, nine of which were excluded from the abstract for diverging from the topic. The clinical case was developed collectively and the authors delegated with putting themselves in the place of those involved in this decision and narrating the possible thoughts and feelings of each one of them. Then, bibliographic references were used to discuss the constructed clinical case, from the bioethical perspective. CONCLUSION: Saviour siblings related bioethical issues are delicate and complex. On the one hand, there's a benefit of saving a sick child and bringing relief to the parents. But, on the other hand, this technique can bear on eugenic practices such as the selection of individuals based on their genetics. The violation of the saviour sibling's autonomy needs to be the focus of future ethical discussions in order to protect his rights. Teaching bioethics is essential for the training of health professionals.
谁救谁?救世主兄弟和他们的生物伦理方面
引言:这篇文章的想法是在一门课程中产生的,在这门课程中,学生们被组织成小组讨论一个生物伦理学主题,选择的主题是“救世主兄弟姐妹”。“救世主兄弟姐妹”是指怀上的孩子,希望能与患有某种疾病的哥哥在基因上相容,而哥哥的治疗方式是捐献组织。目的:从生物伦理学的角度探讨救世主兄弟姐妹的概念及其主题的微妙和复杂性。方法:于2019年8月在PubMed数据库中进行文献综述,关键词为“救世主兄弟姐妹”。获得的材料用于讨论和阐述一个临床病例。结果:共检索到40篇文献,其中9篇因偏离主题被排除在摘要之外。临床病例是集体开发的,作者委托把自己放在那些参与这个决定的地方,并叙述他们每个人可能的想法和感受。然后,从生物伦理学的角度,利用文献参考文献对所构建的临床病例进行讨论。结论:救世主兄弟姐妹相关的生物伦理问题是微妙而复杂的。一方面,拯救一个生病的孩子,给父母带来解脱是有好处的。但是,另一方面,这种技术也可以影响优生实践,比如根据基因选择个体。为了保护救主兄弟姐妹的权利,对救主兄弟姐妹自主权的侵犯需要成为未来伦理讨论的焦点。教授生物伦理学对卫生专业人员的培训至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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