Calidad de vida en población pediátrica entre los 7 a 11 años con discapacidad intelectual. Barranquilla 2017–2018.

Abstract

Background: Intellectual disability occurs in approximately 3% of the world population, increase in the child population by up to 10%. Intellectual disability requires interdisciplinary intervention in different professional areas, medical, psychological, and educational services. Knowledge about the quality of life in these patients is the cornerstone in reviewing protocols, recommendations, and decision-making to focus on improving their quality of life. Objective: Evaluate the quality of life in children between 7 and 11 years old with intellectual disabilities. Barranquilla, period 2017 - 2018. Materials and Methods: Descriptive, prospective study with survey application; patients between 7 and 11 years of age diagnosed with some degree of intellectual disability, being followed up by neuro pediatric. The KidsLife Scale was applied, designed, and validated to assess children and adolescent's quality of life with intellectual disabilities. Results: The male sex reached the highest frequency of population with 61%, mean age 9.2 ± 1.4 years, 50% had a mild intellectual disability, the distribution by dimensions showed that for social inclusion, 69% had a <50 percentile, in self-determination 51% percentile ≥ 50, in emotional well-being 54% percentile ≥ 50. Conclusions: The quality-of-life index in children between 7 to 11 years of age with an intellectual disability presents lower 50th percentiles in 37%, which that demonstrates a perception of quality of life with some degree of deficiency, denoting itself primarily in the dimensions of self-determination, interpersonal relationships, physical well-being, and personal development.