The unexpected and unanticipated announcement of the “world’s first” gene edited babies: breaching, repairing and strengthening community boundaries

IF 1.3 4区 医学 Q4 BIOTECHNOLOGY & APPLIED MICROBIOLOGY
R. Dimond, Jamie Lewis, Alice Sumner
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引用次数: 1

Abstract

The 2018 announcement that the world ’ s fi rst babies had been born following gene editing was unexpected and unanticipated. In this article, we focus on the reaction to the announcement and explore how this revealed implicit and explicit assumptions about the role and responsibilities of scientists and scienti fi c standards. Through analysis of media coverage and public commentary about the birth of the “ world ’ s fi rst, ” we identify how the event was constructed as a breach of scienti fi c norms. We begin by identifying the use of an “ if true ” narrative, which contributed to the meanings of the technology and the births following the initial announcement. We consider two dimensions to the concept of “ breach, ” as an individual act of transgression and as a rupture of community norms. Finally, we consider the work of the broader scienti fi c community in repairing the damage and their attempts to strengthen its boundaries to prevent future transgressions.
“世界上第一个”基因编辑婴儿的意外宣布:打破、修复和加强社区边界
2018年,世界上第一批婴儿在基因编辑后出生的消息出人意料。在本文中,我们将重点关注对该公告的反应,并探讨这如何揭示了关于科学家和科学标准的角色和责任的隐性和显性假设。通过对“世界第一”诞生的媒体报道和公众评论的分析,我们确定了这一事件是如何被构建为违反科学规范的。我们首先确定“如果是真的”叙事的使用,这有助于技术的意义和最初宣布后的出生。我们考虑了“违约”概念的两个维度,即个人的违法行为和对社区规范的破坏。最后,我们考虑了更广泛的科学界在修复损害方面的工作,以及他们试图加强其边界以防止未来的越界。
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来源期刊
New Genetics and Society
New Genetics and Society 生物-生物工程与应用微生物
CiteScore
4.30
自引率
16.70%
发文量
19
审稿时长
>12 weeks
期刊介绍: New Genetics and Society: Critical Studies of Contemporary Biosciences is a world-leading journal which: -Provides a focus for interdisciplinary and multi-disciplinary, leading-edge social science research on the new genetics and related biosciences; -Publishes theoretical and empirical contributions reflecting its multi-faceted development; -Provides an international platform for critical reflection and debate; -Is an invaluable research resource for the many related professions, including health, medicine and the law, wishing to keep abreast of fast changing developments in contemporary biosciences. New Genetics and Society publishes papers on the social aspects of the new genetics (widely defined), including gene editing, genomics, proteomics, epigenetics and systems biology; and the rapidly developing biosciences such as biomedical and reproductive therapies and technologies, xenotransplantation, stem cell research and neuroscience. Our focus is on developing a better understanding of the social, legal, ethical and policy aspects, including their local and global management and organisation.
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