Survey on the usefulness and effectiveness of the DX¶-introduced chronic disability registry

Abstract

This survey presents methods for enhancing and promoting health information for each life course, especially the resilient course, to introduce an example of surveys that should be realized for disability health. In this survey, we will verify the usefulness of data utilization related to health from the viewpoint of self-management performed by “individuals,” such as persons with disabilities/families. To this end, we will first develop and evaluate onset/exacerbation algorithms in normal times using biometric information sensors and environmental sensors. Next, assuming an emergency with health risks, we will verify them by measuring their changes. In addition to a qualitative survey, we will propose “matters necessary for preparation for normal times” from the parties’ perspective. Through these, we will explore the advantages of utilizing data for both individuals and groups, such as enriching outcome information from the patients/ parties’ views, and obtaining data that contributes to evidence-based medicine (EBM).