Transitioning Ambulatory Medicine from Pediatrics to Adult Care for Patients with Epilepsy and Intellectual Disability

IF 0.2 Q4 PEDIATRICS
Derryl Miller, M. Felker, M. Ciccarelli
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引用次数: 1

Abstract

Abstract Consensus statements and clinical reports exist to guide the transition of youth from pediatric to adult healthcare services. Across the range of youth with no chronic health conditions to those with the most complex disabilities, the standards of practice continue to vary broadly across the country and internationally. Youth and young adults with combined conditions of epilepsy with intellectual disability are a small subset of the total population of young adults who share common needs. These include a system of supports that supplement each person's limitations in autonomy and self-management. Caregivers play significant roles in their lives, whether they are family members or paid direct service providers. Medical decision making and treatment adherence require specific adaptations for patients whose independence due to disability is unlikely. Key issues related to tuberous sclerosis complex, neurofibromatosis, and Rett and Sturge–Weber syndromes will be highlighted.
门诊医学从儿科过渡到成人护理癫痫和智力残疾患者
摘要:共识声明和临床报告存在,以指导青少年从儿科过渡到成人医疗保健服务。从没有慢性健康问题的青年到患有最复杂残疾的青年,全国各地和国际上的做法标准仍然差别很大。患有癫痫合并智力残疾的青年和青壮年是具有共同需求的青壮年总人口中的一小部分。这包括一个支持系统,以补充每个人在自主和自我管理方面的局限性。照顾者在他们的生活中扮演着重要的角色,无论是家庭成员还是付费的直接服务提供者。医疗决策和治疗依从性需要对因残疾而不太可能独立的患者进行特殊适应。与结节性硬化症、神经纤维瘤病、Rett综合征和斯特奇-韦伯综合征相关的关键问题将被强调。
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来源期刊
自引率
0.00%
发文量
21
期刊介绍: The Journal of Pediatric Epilepsy is an English multidisciplinary peer-reviewed international journal publishing articles on all topics related to epilepsy and seizure disorders, epilepsy surgery, neurology, neurosurgery, and neuropsychology in childhood. These topics include the basic sciences related to the condition itself, the differential diagnosis, natural history, and epidemiology of seizures, and the investigation and practical management of epilepsy (including drug treatment, neurosurgery and non-medical and behavioral treatments). Use of model organisms and in vitro techniques relevant to epilepsy are also acceptable. Journal of Pediatric Epilepsy provides an in-depth update on new subjects and current comprehensive coverage of the latest techniques used in the diagnosis and treatment of childhood epilepsy.
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