Examination of the effects of COVID-19 on the psychosocial life and the sources of social support of people with rare diseases in Turkey

IF 16.4 1区化学 Q1 CHEMISTRY, MULTIDISCIPLINARY

Accounts of Chemical Research Pub Date : 2021-06-09 DOI:10.1080/02185385.2021.1935310

Merve Deniz Pak Güre, M. Karataş, Veli Duyan

引用次数: 1

Abstract

ABSTRACT The study aims to examine the effects of the COVID-19 on the psychosocial life and the sources of social support of people with rare diseases in Turkey. The research was conducted with 178 rare disease patients. The sociodemographic questionnaire, The Fear of COVID-19 scale, General Health Survey-12, and the Multidimensional Scale of Perceived Social Support were used. The Fear of COVID-19 Scale average score is 20.20 ± 6.11, General Health Survey-12 average score is 5.82 ± 1.77, and the Multidimensional Scale of Perceived Social Support average score is 52.84 ± 14.23. There is a positive correlation between ages and scores on The Fear of COVID-19 Scale (r = .221, p˂.001). There is a negative correlation between the participant’s scores on the Multidimensional Perceived Social Support Scale and the General Health Survey-12 (r = -,265, p˂.001). It is suggested to develop social service delivery systems to support people with rare diseases.]

查看原文本刊更多论文

审查2019冠状病毒病对土耳其罕见病患者的心理社会生活和社会支持来源的影响

本研究旨在研究2019冠状病毒病(COVID-19)对土耳其罕见病患者的心理社会生活和社会支持来源的影响。该研究对178名罕见疾病患者进行了研究。采用社会人口学问卷、COVID-19恐惧量表、一般健康调查-12和感知社会支持多维量表。新冠肺炎恐惧量表平均得分为20.20±6.11分，一般健康调查-12量表平均得分为5.82±1.77分，感知社会支持多维量表平均得分为52.84±14.23分。年龄与COVID-19恐惧量表得分呈正相关(r = 0.221, p小于0.001)。参与者在多维感知社会支持量表上的得分与一般健康调查-12呈负相关(r = -，265, p小于0.001)。建议发展社会服务提供系统以支持罕见病患者。]

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Accounts of Chemical Research 化学-化学综合

CiteScore

31.40

自引率

1.10%

发文量

312

审稿时长

2 months

期刊介绍： Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.