Une recherche citoyenne sur l’article 12 de la convention de l’ONU sur les droits des personnes handicapées

IF 0.9 Q4 REHABILITATION

Alter-European Journal of Disability Research Pub Date : 2021-04-01 DOI:10.1016/j.alter.2020.06.007

Benoit Eyraud , Arnaud Béal , Nacerdine Bezghiche , Stef Bonnot-Briey , Chantal Bruno , Erick Cattez , Jean-Philippe Cobbaut , Sylvie Daniel , Guillaume François , Julien Grard , Gael Klein , Michel Lalemant , Céline Lefebvre , Valérie Lemard , Jacques Lequien , Céline Letailleur , Claudine Levray , Marc Losson , Ana Marques , Bernard Meile , Florie Vuattoux

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引用次数: 1

Abstract

In this article, we present findings from a participatory action research program in France on the exercise of human rights and supported and substitute decision-making, inspired by the United Nations Convention on the Rights of Persons with Disabilities (“CRPD”). Bringing together persons with the lived experience of disability, academics, and health and social care and support professionals, the project used the method of “experience-based construction of public problem” to transform experience into collective expertise. This enabled the exploration of support that persons in vulnerable situations, whose capacity to exercise their human rights has weakened, need to make decisions in their lives and participate meaningfully in public debate. The relationship between the awareness of rights and exercise of rights is discussed. We argue for the need to balance out the positions of different contributors in participatory action research, in a reasoned manner, by recognizing the scientific and citizen-based participation of all partners.

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关于《联合国残疾人权利公约》第12条的公民研究

在本文中，我们介绍了受《联合国残疾人权利公约》(“CRPD”)启发，在法国开展的一项关于人权行使、支持性和替代性决策的参与性行动研究项目的研究结果。该项目将有残疾生活经验的人士、学者以及卫生和社会护理和支助专业人员聚集在一起，采用"基于经验的公共问题构建"方法，将经验转化为集体专业知识。这使得能够探索为处于弱势地位的人提供支持，因为他们行使其人权的能力已经减弱，他们需要在生活中作出决定并有意义地参与公共辩论。论述了权利意识与权利行使的关系。我们认为有必要通过承认所有合作伙伴的科学和基于公民的参与，以合理的方式平衡参与性行动研究中不同贡献者的立场。

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来源期刊

Alter-European Journal of Disability Research REHABILITATION-

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期刊介绍： ALTER is a peer-reviewed European journal which looks at disability and its variations. It is aimed at everyone who is involved or interested in this field. ALTER is an emblematic Latin word for all forms of difference, leaving open the question of their nature and expression. An inter-disciplinary journal First and foremost, interdisciplinarity means remaining open to all human and social sciences: sociology, anthropology, psychology, psychoanalysis, history, demography, epidemiology, economics, law, etc. It also means a connection between the different forms of knowledge - academic and fundamental - applied and relating to the experience of disability.