Everyday life of a family with diabetes as described by adults with type 1 diabetes

European Diabetes Nursing Pub Date : 2013-11-18 DOI:10.1002/edn.234

T-M Rintala MNsc, E Paavilainen PhD, P Åstedt-Kurki PhD

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引用次数: 24

Abstract

Diabetes mellitus is a common chronic disease. According to previous research, family has an important role in the management of diabetes among children and adolescents.

The aim of this study was to describe how adult people with type 1 diabetes experience everyday life in their families.

The Straussian grounded theory method was used to analyse data collected by interviewing 19 people with type 1 diabetes.

On the basis of the data, eight concepts describing different views on everyday living with diabetes were generated: managing hypoglycaemia; balancing self-management needs; performing daily routines in the family; living with changing feelings; diabetes being invisibly present; protecting the family's well-being; the family members variously contributing to the self-management; and learning to live with diabetes in the family.

In conclusion, everyday life in families includes many different issues and family members are involved in the self-management of diabetes in many ways. In the interests of developing family-centred education and care, it is important to understand how adult people with type 1 diabetes experience everyday life within their families. Eur Diabetes Nursing 2013; 10(3): 86–90

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成人1型糖尿病患者描述的糖尿病家庭的日常生活

糖尿病是一种常见的慢性病。根据以往的研究，家庭在儿童和青少年糖尿病的管理中起着重要的作用。这项研究的目的是描述患有1型糖尿病的成年人如何在他们的家庭中体验日常生活。采用施特劳斯扎根理论方法对19名1型糖尿病患者进行访谈，收集数据进行分析。在这些数据的基础上，产生了八个概念，描述了对糖尿病患者日常生活的不同看法:管理低血糖;平衡自我管理需求;完成家庭日常事务;带着变化的感情生活;糖尿病隐形存在;保护家庭幸福;家庭成员在自我管理方面做出了不同的贡献;学会在家庭中与糖尿病共存。总之，家庭的日常生活包括许多不同的问题，家庭成员以多种方式参与糖尿病的自我管理。为了发展以家庭为中心的教育和护理，了解成年1型糖尿病患者在家庭中的日常生活是很重要的。欧洲糖尿病护理2013;(3): 86 - 90

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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European Diabetes Nursing

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