Governance of research and product improvement studies in consumer mental health apps. Interviews with researchers and app developers.

IF 2.8 1区 哲学 Q1 MEDICAL ETHICS
Kamiel Verbeke, Charu Jain, Ambra Shpendi, Pascal Borry
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引用次数: 0

Abstract

Consumer mental health apps (MHAs) collect and generate mental health-related data on their users, which can be leveraged for research and product improvement studies. Such studies are associated with ethical issues that may be difficult for researchers and app developers to assess. To improve ethical study conduct, governance through rules, agreements and customs could be relied upon, but their translation into practice is subject to barriers. This qualitative interview study with 17 researchers and app developers looked into the role and impact of governance standards on consumer MHA studies. Interviewees experienced a significant number of rules, agreements and customs, although not all of the governance standards that can potentially be applicable. Standards did have an impact on the interests of researchers and app developers, app users and society, but this impact was mediated by several barriers related to their conceptualization and implementation. Conceptualization barriers impacted the development of a standard, the inclusion of relevant concepts and the coordination between standards. Implementation barriers concerned the resource cost of understanding a standard, as well as suboptimal enforcement. The framework developed in this study can support more effective efforts to improve the governance of future consumer MHA studies.

消费者心理健康应用程序中的研究治理和产品改进研究。对研究人员和应用程序开发人员的采访。
消费者心理健康应用程序(MHA)收集并生成用户的心理健康数据,可用于研究和产品改进研究。此类研究涉及伦理问题,研究人员和应用程序开发人员可能难以评估这些问题。为了改善伦理研究行为,可以依靠通过规则、协议和习俗进行治理,但将其转化为实践会遇到障碍。这项针对17名研究人员和应用程序开发人员的定性访谈研究探讨了治理标准对消费者MHA研究的作用和影响。受访者经历了大量的规则、协议和习俗,尽管并非所有可能适用的治理标准。标准确实对研究人员和应用程序开发人员、应用程序用户和社会的利益产生了影响,但这种影响是由与其概念化和实施相关的几个障碍所介导的。概念化障碍影响了标准的制定、相关概念的纳入以及标准之间的协调。实施障碍涉及理解标准的资源成本,以及执行不力。本研究中开发的框架可以支持更有效的努力,以改善未来消费者MHA研究的治理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
4.90
自引率
14.70%
发文量
49
审稿时长
>12 weeks
期刊介绍: Accountability in Research: Policies and Quality Assurance is devoted to the examination and critical analysis of systems for maximizing integrity in the conduct of research. It provides an interdisciplinary, international forum for the development of ethics, procedures, standards policies, and concepts to encourage the ethical conduct of research and to enhance the validity of research results. The journal welcomes views on advancing the integrity of research in the fields of general and multidisciplinary sciences, medicine, law, economics, statistics, management studies, public policy, politics, sociology, history, psychology, philosophy, ethics, and information science. All submitted manuscripts are subject to initial appraisal by the Editor, and if found suitable for further consideration, to peer review by independent, anonymous expert referees.
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