The needs of families caring for patients with traumatic brain injury: a scoping review.

IF 2.1 4区医学 Q1 REHABILITATION

Disability and Rehabilitation Pub Date : 2024-10-01 Epub Date: 2023-11-06 DOI:10.1080/09638288.2023.2278178

Joshua K Muliira, Eilean R Lazarus, Devakirubai Jacob, Hema Roslin

{"title":"The needs of families caring for patients with traumatic brain injury: a scoping review.","authors":"Joshua K Muliira, Eilean R Lazarus, Devakirubai Jacob, Hema Roslin","doi":"10.1080/09638288.2023.2278178","DOIUrl":null,"url":null,"abstract":"Purpose: This scoping review was conducted to synthesize existing literature into a map of the common needs of families caring for patients with traumatic brain injury (TBI) at home.Materials and methods: A systematic search of studies published between January 2012 and December 2022 was conducted across databases. The selected studies reported the needs or unmet needs of patients with TBI and/or their family caregivers (FCs).Results: A total of 12 publications were identified. The results suggest that the common needs of families caring for patients with TBI at home include: information about TBI as a disease; information about the continuum of TBI healthcare services; information about adaptive technologies; education and skilling of FCs; psychological support and counseling; physical and occupational therapy services; follow-up care and transitional care management; respite care; peer support; financial assistance, advocacy, and legal services; emotional support from the family and community; and assistance with physical patient care and instrumental activities of daily living.Conclusion: The mapped needs provide insight into supportive interventions required to enhance the health outcomes of patients with TBI and their families during and after rehabilitation. The needs also highlight directions for research and healthcare services for patients with TBI.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":null,"pages":null},"PeriodicalIF":2.1000,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Disability and Rehabilitation","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/09638288.2023.2278178","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/11/6 0:00:00","PubModel":"Epub","JCR":"Q1","JCRName":"REHABILITATION","Score":null,"Total":0}

引用次数: 0

Abstract

Purpose: This scoping review was conducted to synthesize existing literature into a map of the common needs of families caring for patients with traumatic brain injury (TBI) at home.

Materials and methods: A systematic search of studies published between January 2012 and December 2022 was conducted across databases. The selected studies reported the needs or unmet needs of patients with TBI and/or their family caregivers (FCs).

Results: A total of 12 publications were identified. The results suggest that the common needs of families caring for patients with TBI at home include: information about TBI as a disease; information about the continuum of TBI healthcare services; information about adaptive technologies; education and skilling of FCs; psychological support and counseling; physical and occupational therapy services; follow-up care and transitional care management; respite care; peer support; financial assistance, advocacy, and legal services; emotional support from the family and community; and assistance with physical patient care and instrumental activities of daily living.

Conclusion: The mapped needs provide insight into supportive interventions required to enhance the health outcomes of patients with TBI and their families during and after rehabilitation. The needs also highlight directions for research and healthcare services for patients with TBI.

查看原文本刊更多论文

照顾创伤性脑损伤患者的家庭需求：范围界定综述。

目的：进行这项范围界定综述是为了将现有文献综合成在家照顾创伤性脑损伤（TBI）患者的家庭的共同需求图。材料和方法：对2012年1月至2022年12月期间发表的研究进行了系统检索。选定的研究报告了TBI患者和/或其家庭照顾者（FC）的需求或未满足的需求。结果：共确定了12份出版物。结果表明，在家照顾TBI患者的家庭的共同需求包括：关于TBI作为一种疾病的信息；关于TBI医疗服务连续性的信息；关于适应性技术的信息；FC的教育和技能；心理支持和咨询；物理和职业治疗服务；后续护理和过渡护理管理；临时护理；同行支持；财政援助、宣传和法律服务；来自家庭和社区的情感支持；以及协助病人的身体护理和日常生活的工具性活动。结论：绘制的需求为提高TBI患者及其家人在康复期间和康复后的健康结果所需的支持性干预措施提供了见解。这些需求还突出了TBI患者的研究和医疗服务方向。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Disability and Rehabilitation 医学-康复医学

CiteScore

5.00

自引率

9.10%

发文量

415

审稿时长

3-6 weeks

期刊介绍： Disability and Rehabilitation along with Disability and Rehabilitation: Assistive Technology are international multidisciplinary journals which seek to encourage a better understanding of all aspects of disability and to promote rehabilitation science, practice and policy aspects of the rehabilitation process.