The parental involvement process regarding childhood cancer survivors becoming independent: Focus on balancing health management and social lives from adolescence to adulthood

IF 1.7 4区医学 Q2 NURSING

Japan Journal of Nursing Science Pub Date : 2023-11-08 DOI:10.1111/jjns.12572

Kyoko Miyagishima, Kazuko Ichie, Kimiyoshi Sakaguchi, Yuka Kato

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引用次数: 0

Abstract

Aim

This study aimed to elucidate the parental involvement process regarding childhood cancer survivors' (CCSs') independence while balancing their health management and social lives from adolescence to adulthood to obtain suggestions for long-term support for CCSs and their parents.

Methods

Semi-structured interviews were conducted with 19 parents of Japanese CCSs aged 16–25 years. The data were then qualitatively analyzed using the modified grounded theory approach.

Results

Three “categories” and 20 “concepts” were generated. The connections among these categories and concepts revealed the parental involvement process regarding CCSs' independence while balancing their health management and social lives. The first phase in this process is to “support careful behaviors,” mainly during CCSs' treatment in the outpatient clinic or shortly after discharge. As CCSs recover after cancer treatment, parents “watch over, but feel conflicted,” with “conflicts between protecting their sons/daughters and giving them independence.” Then, parents reach a phase in which they “acknowledge and entrust,” which includes “acknowledgment of development and efforts” of their sons/daughters, and develop an “attitude to entrust medical checkups to their sons/daughters, along with their preparation.” The influencing factors of the three phases include “ongoing anxieties about the late effects of therapy and recurrence” and an “expectation for their sons/daughters to acquire abilities for living independently.”

Conclusions

These findings suggest that nurses need to accept parents' feelings and thoughts regarding conflicts with CCSs, recognition of CCSs' development, and values. These processes may help nurses and health-care professionals support parents from a comprehensive perspective.

查看原文本刊更多论文

儿童癌症幸存者独立的父母参与过程：从青春期到成年期，注重平衡健康管理和社会生活。

目的：本研究旨在阐明父母参与儿童癌症幸存者（CCS）独立性的过程，同时平衡他们从青春期到成年的健康管理和社会生活，以获得对CCS及其父母的长期支持建议。方法：对19名16-25岁的日本CCSs父母进行半结构化访谈年。然后使用修正的接地理论方法对数据进行定性分析。结果：生成了3个“类别”和20个“概念”。这些类别和概念之间的联系揭示了父母在平衡CCSs的健康管理和社会生活的同时，对其独立性的参与过程。这个过程的第一阶段是“支持谨慎的行为”，主要是在CCSs在门诊治疗期间或出院后不久。当CCS在癌症治疗后康复时，父母“看着，但感到矛盾”，“保护他们的儿子/女儿和给予他们独立之间的冲突”。然后，父母进入了一个他们“承认和委托”的阶段，其中包括“承认儿子/女儿的发展和努力”，三个阶段的影响因素包括“对治疗和复发的后期影响的持续焦虑”和“对儿子/女儿获得独立生活能力的期望”。“结论：这些发现表明，护士需要接受父母对与CCSs冲突的感受和想法，对CCSs的发展和价值观的认可。这些过程可能有助于护士和医疗保健专业人员从全面的角度支持父母。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Japan Journal of Nursing Science 医学-护理

CiteScore

4.10

自引率

0.00%

发文量

审稿时长

>12 weeks

期刊介绍： The Japan Journal of Nursing Science is the official English language journal of the Japan Academy of Nursing Science. The purpose of the Journal is to provide a mechanism to share knowledge related to improving health care and promoting the development of nursing. The Journal seeks original manuscripts reporting scholarly work on the art and science of nursing. Original articles may be empirical and qualitative studies, review articles, methodological articles, brief reports, case studies and letters to the Editor. Please see Instructions for Authors for detailed authorship qualification requirement.