{"title":"Recruitment of Indigenous Study Participants in Canada: Obligations or Constraints? An Ethical Reflection","authors":"P. Farrugia","doi":"10.7202/1089789ar","DOIUrl":null,"url":null,"abstract":"Recruitment of study participants from marginalized populations present unique challenges for researchers and associated institutions. Researchers must be aware of the specific adaptations required in the research process in conducting research within and Indigenous populations. Cultural consciousness is key with any research conducted within these populations to understand the past issues that can influence present and future willingness to participate in research. This article aims to provide context and examples where increasing cultural awareness of specific ethical principles during the recruitment phase can affect the study process as well as the researcher themselves. Integrating Indigenous cultural concepts within the recruitment and study design process can help to lay the groundwork for a positive research process as a whole and facilitate Résumé Abstract Le recrutement de participants à des études au sein de populations marginalisées présente des défis uniques pour les chercheurs et les institutions associées. Les chercheurs doivent être conscients des adaptations spécifiques requises dans le processus de recherche pour mener des recherches au sein des populations autochtones. La conscience culturelle est essentielle pour toute recherche menée au sein de ces populations, afin de comprendre les problèmes passés qui peuvent influencer la volonté actuelle et future de participer à la recherche. Cet article vise à fournir un contexte et des exemples où une sensibilisation culturelle accrue à des principes éthiques spécifiques pendant la phase de recrutement peut avoir un impact sur le processus d’étude ainsi que sur le chercheur lui-même. L’intégration de concepts culturels indigènes dans le processus de recrutement et de conception de l’étude peut contribuer à jeter les bases d’un processus de recherche positif dans son ensemble et faciliter un environnement d’étude approprié pour toutes les personnes impliquées. process can help to lay the groundwork for a positive research process as a whole and facilitate an appropriate study environment for all involved. Mots-clés research questions (and analysis) and indigenous ways of knowing that lead to community benefits without stigmatization for participation in research. Awareness of these issues and acknowledgement of Indigenous perspectives on research are a key step for non-Indigenous researchers in the recruitment process, and the ethical conduct of research more generally.","PeriodicalId":37334,"journal":{"name":"Canadian Journal of Bioethics","volume":"1 1","pages":""},"PeriodicalIF":0.3000,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Canadian Journal of Bioethics","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.7202/1089789ar","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"MEDICAL ETHICS","Score":null,"Total":0}
引用次数: 0
Abstract
Recruitment of study participants from marginalized populations present unique challenges for researchers and associated institutions. Researchers must be aware of the specific adaptations required in the research process in conducting research within and Indigenous populations. Cultural consciousness is key with any research conducted within these populations to understand the past issues that can influence present and future willingness to participate in research. This article aims to provide context and examples where increasing cultural awareness of specific ethical principles during the recruitment phase can affect the study process as well as the researcher themselves. Integrating Indigenous cultural concepts within the recruitment and study design process can help to lay the groundwork for a positive research process as a whole and facilitate Résumé Abstract Le recrutement de participants à des études au sein de populations marginalisées présente des défis uniques pour les chercheurs et les institutions associées. Les chercheurs doivent être conscients des adaptations spécifiques requises dans le processus de recherche pour mener des recherches au sein des populations autochtones. La conscience culturelle est essentielle pour toute recherche menée au sein de ces populations, afin de comprendre les problèmes passés qui peuvent influencer la volonté actuelle et future de participer à la recherche. Cet article vise à fournir un contexte et des exemples où une sensibilisation culturelle accrue à des principes éthiques spécifiques pendant la phase de recrutement peut avoir un impact sur le processus d’étude ainsi que sur le chercheur lui-même. L’intégration de concepts culturels indigènes dans le processus de recrutement et de conception de l’étude peut contribuer à jeter les bases d’un processus de recherche positif dans son ensemble et faciliter un environnement d’étude approprié pour toutes les personnes impliquées. process can help to lay the groundwork for a positive research process as a whole and facilitate an appropriate study environment for all involved. Mots-clés research questions (and analysis) and indigenous ways of knowing that lead to community benefits without stigmatization for participation in research. Awareness of these issues and acknowledgement of Indigenous perspectives on research are a key step for non-Indigenous researchers in the recruitment process, and the ethical conduct of research more generally.