The Most Effective Method to Instruct Others about youruncommon illness

Abstract

Rare diseases have taken a toll on the health of patients and their families mostly contributing to the shallow knowledge in order to explain the complexity of the situation to the physician; thereby ending up in late diagnosis and misdiagnosis. The aim of this study was to report the training needs in the general public health system within the diagnosis, treatment and monitoring of patients with rare diseases and to create awareness so as to make a better place for such uncommon ailments.