The experiences and needs of parents of children with asthma in coping with the child’s disease

IF 1 4区综合性期刊 Q3 MULTIDISCIPLINARY SCIENCES

Proceedings of the Estonian Academy of Sciences Pub Date : 2023-01-01 DOI:10.3176/proc.2023.3.09

K. Kööp, M. Tupits

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引用次数: 0

Abstract

. About 14% of children have asthma, and despite effective treatments, the outcome is not always as expected, with hospitalisation rates remaining high. Parents of children with asthma experience stress as they doubt their ability to cope with the difficult circumstances. Parents complain that they do not have sufficient information on the reduction of factors associated with disease exacerbation. They need knowledge of how to effectively participate in coping with the disease. The aim of the research is to describe the experiences and needs of parents of children with asthma in coping with the child’s disease. The design of the research is qualitative and descriptive. The data were collected through semi-structured interviews and analysed by an inductive content analysis method. The interviews were conducted in the autumn of 2021. The subjects were found with the help of the Tallinn Children’s Hospital staff. Eight subjects participated in the research. The results of the study showed that the parents’ experiences in coping with the child’s disease consisted of health-related experiences, life management and material challenges, experiences with relationships, and various support systems. The needs of parents in dealing with the child’s disease included the need for various services, the need for information, the need to support the child, and health needs of both the parents and the child. Parents experienced socio-economic difficulties and incomplete information when coping with the child’s disease. For this reason, families should receive support from various specialists and organisations, and the role of nurses is to be a connecting link between families and support services.

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哮喘患儿家长应对儿童疾病的经验和需求

．大约14%的儿童患有哮喘，尽管有有效的治疗方法，但结果并不总是如预期的那样，住院率仍然很高。患有哮喘的孩子的父母会感到压力，因为他们怀疑自己是否有能力应对困难的环境。家长抱怨说，他们没有足够的信息来减少与疾病恶化有关的因素。他们需要了解如何有效地参与应对这种疾病。该研究的目的是描述哮喘儿童的父母在应对儿童疾病方面的经验和需求。研究的设计是定性和描述性的。数据采用半结构化访谈法收集，并采用归纳内容分析法进行分析。采访是在2021年秋季进行的。实验对象是在塔林儿童医院工作人员的帮助下找到的。共有8名受试者参与了这项研究。研究结果显示，父母应对孩子疾病的经历包括健康相关经历、生活管理和物质挑战、人际关系经历和各种支持系统。父母在处理儿童疾病方面的需要包括对各种服务的需要、对信息的需要、对儿童的支持的需要以及父母和儿童双方的保健需要。父母在处理孩子的疾病时经历了社会经济困难和不完整的信息。因此，家庭应该得到各种专家和组织的支持，护士的作用是家庭和支持服务之间的联系。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Proceedings of the Estonian Academy of Sciences 综合性期刊-综合性期刊

CiteScore

1.80

自引率

22.20%

发文量

审稿时长

>12 weeks

期刊介绍： The Proceedings of the Estonian Academy of Sciences is an international scientific open access journal published by the Estonian Academy of Sciences in collaboration with the University of Tartu, Tallinn University of Technology, Tallinn University, and the Estonian University of Life Sciences. The journal publishes primary research and review papers in the English language. All articles are provided with short Estonian summaries. All papers to be published in the journal are peer reviewed internationally. The journal is open to word-wide scientific community for publications in all fields of science represented at the Estonian Academy of Sciences and having certain connection with our part of the world, North Europe and the Baltic area in particular.