Messages about Diabetes: A Mind Genomics Exploration of Communicating for Medicine & Public Health

G. Gabay, Glenn Zemel, Ryan Zemel
{"title":"Messages about Diabetes: A Mind Genomics Exploration of Communicating for Medicine & Public Health","authors":"G. Gabay, Glenn Zemel, Ryan Zemel","doi":"10.31038/edmj.2019354","DOIUrl":null,"url":null,"abstract":"Awareness to risks of type II diabetes, the epidemic of the 21st century, is low. We present an investigation into the messages about diabetes which resonate with respondents. The approach uses experimentally designed combinations of messages, unique for each respondent, with the property that the messages appear in a way that prevents the respondent from ‘gaming’ the experiment. Each respondent generates a unique pattern of coefficients for both important of messages, and response time to messages. The study suggests three mind-sets (Focus on the sufferer alone; The doctor is the source of knowledge; Focus on management with the help of others.) We present the PVI, personal viewpoint identifier, allowing the researcher to identify the appropriate convincing message for each respondent, who is first assigned to one of the three mind-sets by the PVI. The Mind Genomics study provides the health community with an easy-to-use system for understanding and deploying convincing messages in health-relevant situations, and may serve as an ongoing, working tool, for health maintenance among the general population. Introduction One only needs to open any medical journal to read about the medical issues involved in one or another aspect of diabetes. The popular press, and especially the web, are filled with stories about the issues of diabetes, the newspapers filled with latest information about specific issues involved with diabetes as a looming disaster for society, the magazines filled with stories about personal encounters with diabetes, and to those on the web innumerable advertisements about what to do and what not to do to forestall diabetes. The sheer popularity of diabetes as an issue of discussion is witness to the growing recognition of this developing scourge of society. Type II diabetes has been recognized as a global epidemic of the 21st century [1]. Diabetes is the seventh leading cause of death and disability worldwide [2]. Disability resulting from diabetes has grown substantially between 1990 to 2013 particularly among ages 15–69 years; age-standardized prevalence among adult men doubled from 4.3% to 9% and agestandardized prevalence among adult women increased by 60% from 5% to 8% [3]. People suffering from diabetes are at risk of developing a range of complications endangering their health, functionality and survival. Diabetes has increased across countries [4]. In 2013, 382 million people in 130 countries had diabetes [5]. It is estimated that by 2030 the number of people with Diabetes will rise to 552 million by 2030, and that by 2035 the number of people with diabetes will rise to 592 million (5–7). Despite these concerning data, only a few countries, mostly in Western Europe, seem to have a chance of halting the rise in diabetes by 2030 [4]. Health expenditures associated with diabetes create an economic burden [8]. Epidemiological and economic data for 184 countries suggest that direct global costs accounted for $1.31 trillion, based on WHO’s general health expenditure figures and data from the 2015 [9]. Furthermore, indirect costs of premature mortality and comorbidity due to diabetes accounted for 35% of the total burden with America being the largest contributor to global costs of diabetes [10]. Type II diabetes is caused by factors such as obesity, sedentary lifestyle, diet, smoking, physical and emotional stress which are modifiable [11,12]. Interventions to target modifiable risk factors can prevent or delay the onset of diabetes, but awareness of risks of diabetes is low [10]. The human suffering in diabetes and the economic burden of diabetes on health systems of every country, make diabetes an urgent matter to combat the disease [4]. Education, and especially effective communication, are critical. When people can be effectively educated about the risk and the modifiable factors that can be changed, there is the possibility that the effects of Diabetes can be reduced. One consequence of education is that those individuals who perceive themselves to be at risk of diabetes may be more conscious about what to do, and more likely to follow up on efforts which reduce their risk of developing diabetes [8]. Sadly, little attention was paid to creating effective messages which raise the awareness diabetes risks [1,12]. To be sensitive and effective, messages about risk awareness need proper shaping through framing, narrative impact or visual imagery [11]. These messages should Howard Moskowitz (2019) Messages about Diabetes: A Mind Genomics Exploration of Communicating for Medicine & Public Health Endocrinol Diabetes Metab J, Volume 3(5): 2–13, 2019 acknowledge the role of individuals in adopting healthy behaviors, and consciously avoid activating negative stereotypes or arousing anger at the message source [13]. Effective messaging will enable health professionals and health policy makers to identify and to use the most effective message for each person in the population by mindset segments of the sample. How do we understand the mind, and enhance risk awareness effectively? Formal statistics provide no sense of how people ‘feel’, and to what people ‘react’. Softer yet quantitative methods provide other points of view. Mind-Genomics is an approach best described a ‘cartography of the mind’ which studies responses to different aspects of daily life experience [14–16]. Mind-Genomics maps an experience, identifies its different facets, determines to what facets the person attends, and how important each facet is for each person [14,17–22] By dealing with responses to elements of everyday experience, as they are reacted to by people, Mind-Genomics reveals how people react to the specifics of experience, looking at the nuances, and thus taking into account the richness of experience. Mind-Genomics is an empirical science, mapping aspects of experience by importance, and segmenting different groups of people by their different viewpoints, so-called mind-sets. This Mind-Genomics study identifies effective messaging to raise awareness to risk of diabetes, looking at the general population by the different mind-sets, and what will work (as well as what will fail) for each mind-set. At the very practical level, in both the medical and non-medical worlds, what does one say to alert the population to the potential problems of diabetes? What does one say to direct people to the proper behaviors, and encourage them, in order to forestall diabetes? And, if one puts the current messaging to the test, do the content of today’s messages strike a resonant chord in the mind of the average consumer? Must we frighten people into a better lifestyle? [23–26]. Finally, as part of this introduction, can we identify different types of people, responding to various messages. We know from the popular press that there is a plethora of choice and the corresponding paradox of choice [27]. In the world of food, for example, we now know both from science and from the marketplace that people have different preferences for products, and will gravitate to what they like, rejecting what they dislike. Prego, for example, is just such a phenomenon, of a product once appearing in one SKU (shop-keeping unit), but now proliferating into more than a dozen, with varieties coming in and out of the market every year. Do we have the same distribution of preferences, not for a physical food product, but rather for a message, such as the type of message to warn us about diabetes? Method The approach used is known as Mind Genomics, a form of experimental design in which messages are combined into short, easy-to-read vignettes, such as that shown in Figure 1 for this study. The messages are developed by a Socratic method of choosing a topic, asking four related questions which ‘tell a story,’ providing four answers to each question, and testing combinations of these answers. Mind Genomics, based upon the statistical rigor of experimental design [28] combined with simple testing of combinations by the web, creates a method which is fast, easy, affordable, iterative, and scalable. The objective is to work with small, cost-effective groups of respondents, members of a large on-line panel, and explore different messages in an iterative fashion, to discover what ‘works’, to discover possibly ‘newto-the-world’ mind-sets, and when possible iterate rapidly across a series of studies to fine tune messages [14,29,30.] Figure 1. Example of a vignette for the diabetes study The methods of Mind Genomics enjoy a long history. Psychologists and marketers have known for decades that the everyday experience of people is not easily uncovered by the conventional scientific method of isolate and then study. For some phenomenon, such isolation works very well to help the researcher understand the phenomenon. The everyday experience of people, the world of normal behavior where Howard Moskowitz (2019) Messages about Diabetes: A Mind Genomics Exploration of Communicating for Medicine & Public Health Endocrinol Diabetes Metab J, Volume 3(5): 3–13, 2019 diabetes is a relevant issue, cannot be easily understood by isolating variables in a clinical way. Rather, it is important to simulate the compound and complex nature of experience, where an individual is presented with many stimuli of different types, all competing for attention. To this end, experimental design of ideas was promoted by pioneer researchers in the world of marketing, Professors Paul Green and Jerry Wind, at the Wharton School of the University of Pennsylvania [31,32] It is their pioneering which has stimulated the research in this paper, albeit the topic has changed from issues in marketing to issues in public health, namely diabetes. It is important to keep in mind that Mind Genomics studies do not purport to be the ultimate in terms of what works in communication of a topic. Rather, each Mind Genomics study provides a wealth of information in and of itself, as well as a platform both for archiving scie","PeriodicalId":72911,"journal":{"name":"Endocrinology, diabetes and metabolism journal","volume":"1 1","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Endocrinology, diabetes and metabolism journal","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.31038/edmj.2019354","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0

Abstract

Awareness to risks of type II diabetes, the epidemic of the 21st century, is low. We present an investigation into the messages about diabetes which resonate with respondents. The approach uses experimentally designed combinations of messages, unique for each respondent, with the property that the messages appear in a way that prevents the respondent from ‘gaming’ the experiment. Each respondent generates a unique pattern of coefficients for both important of messages, and response time to messages. The study suggests three mind-sets (Focus on the sufferer alone; The doctor is the source of knowledge; Focus on management with the help of others.) We present the PVI, personal viewpoint identifier, allowing the researcher to identify the appropriate convincing message for each respondent, who is first assigned to one of the three mind-sets by the PVI. The Mind Genomics study provides the health community with an easy-to-use system for understanding and deploying convincing messages in health-relevant situations, and may serve as an ongoing, working tool, for health maintenance among the general population. Introduction One only needs to open any medical journal to read about the medical issues involved in one or another aspect of diabetes. The popular press, and especially the web, are filled with stories about the issues of diabetes, the newspapers filled with latest information about specific issues involved with diabetes as a looming disaster for society, the magazines filled with stories about personal encounters with diabetes, and to those on the web innumerable advertisements about what to do and what not to do to forestall diabetes. The sheer popularity of diabetes as an issue of discussion is witness to the growing recognition of this developing scourge of society. Type II diabetes has been recognized as a global epidemic of the 21st century [1]. Diabetes is the seventh leading cause of death and disability worldwide [2]. Disability resulting from diabetes has grown substantially between 1990 to 2013 particularly among ages 15–69 years; age-standardized prevalence among adult men doubled from 4.3% to 9% and agestandardized prevalence among adult women increased by 60% from 5% to 8% [3]. People suffering from diabetes are at risk of developing a range of complications endangering their health, functionality and survival. Diabetes has increased across countries [4]. In 2013, 382 million people in 130 countries had diabetes [5]. It is estimated that by 2030 the number of people with Diabetes will rise to 552 million by 2030, and that by 2035 the number of people with diabetes will rise to 592 million (5–7). Despite these concerning data, only a few countries, mostly in Western Europe, seem to have a chance of halting the rise in diabetes by 2030 [4]. Health expenditures associated with diabetes create an economic burden [8]. Epidemiological and economic data for 184 countries suggest that direct global costs accounted for $1.31 trillion, based on WHO’s general health expenditure figures and data from the 2015 [9]. Furthermore, indirect costs of premature mortality and comorbidity due to diabetes accounted for 35% of the total burden with America being the largest contributor to global costs of diabetes [10]. Type II diabetes is caused by factors such as obesity, sedentary lifestyle, diet, smoking, physical and emotional stress which are modifiable [11,12]. Interventions to target modifiable risk factors can prevent or delay the onset of diabetes, but awareness of risks of diabetes is low [10]. The human suffering in diabetes and the economic burden of diabetes on health systems of every country, make diabetes an urgent matter to combat the disease [4]. Education, and especially effective communication, are critical. When people can be effectively educated about the risk and the modifiable factors that can be changed, there is the possibility that the effects of Diabetes can be reduced. One consequence of education is that those individuals who perceive themselves to be at risk of diabetes may be more conscious about what to do, and more likely to follow up on efforts which reduce their risk of developing diabetes [8]. Sadly, little attention was paid to creating effective messages which raise the awareness diabetes risks [1,12]. To be sensitive and effective, messages about risk awareness need proper shaping through framing, narrative impact or visual imagery [11]. These messages should Howard Moskowitz (2019) Messages about Diabetes: A Mind Genomics Exploration of Communicating for Medicine & Public Health Endocrinol Diabetes Metab J, Volume 3(5): 2–13, 2019 acknowledge the role of individuals in adopting healthy behaviors, and consciously avoid activating negative stereotypes or arousing anger at the message source [13]. Effective messaging will enable health professionals and health policy makers to identify and to use the most effective message for each person in the population by mindset segments of the sample. How do we understand the mind, and enhance risk awareness effectively? Formal statistics provide no sense of how people ‘feel’, and to what people ‘react’. Softer yet quantitative methods provide other points of view. Mind-Genomics is an approach best described a ‘cartography of the mind’ which studies responses to different aspects of daily life experience [14–16]. Mind-Genomics maps an experience, identifies its different facets, determines to what facets the person attends, and how important each facet is for each person [14,17–22] By dealing with responses to elements of everyday experience, as they are reacted to by people, Mind-Genomics reveals how people react to the specifics of experience, looking at the nuances, and thus taking into account the richness of experience. Mind-Genomics is an empirical science, mapping aspects of experience by importance, and segmenting different groups of people by their different viewpoints, so-called mind-sets. This Mind-Genomics study identifies effective messaging to raise awareness to risk of diabetes, looking at the general population by the different mind-sets, and what will work (as well as what will fail) for each mind-set. At the very practical level, in both the medical and non-medical worlds, what does one say to alert the population to the potential problems of diabetes? What does one say to direct people to the proper behaviors, and encourage them, in order to forestall diabetes? And, if one puts the current messaging to the test, do the content of today’s messages strike a resonant chord in the mind of the average consumer? Must we frighten people into a better lifestyle? [23–26]. Finally, as part of this introduction, can we identify different types of people, responding to various messages. We know from the popular press that there is a plethora of choice and the corresponding paradox of choice [27]. In the world of food, for example, we now know both from science and from the marketplace that people have different preferences for products, and will gravitate to what they like, rejecting what they dislike. Prego, for example, is just such a phenomenon, of a product once appearing in one SKU (shop-keeping unit), but now proliferating into more than a dozen, with varieties coming in and out of the market every year. Do we have the same distribution of preferences, not for a physical food product, but rather for a message, such as the type of message to warn us about diabetes? Method The approach used is known as Mind Genomics, a form of experimental design in which messages are combined into short, easy-to-read vignettes, such as that shown in Figure 1 for this study. The messages are developed by a Socratic method of choosing a topic, asking four related questions which ‘tell a story,’ providing four answers to each question, and testing combinations of these answers. Mind Genomics, based upon the statistical rigor of experimental design [28] combined with simple testing of combinations by the web, creates a method which is fast, easy, affordable, iterative, and scalable. The objective is to work with small, cost-effective groups of respondents, members of a large on-line panel, and explore different messages in an iterative fashion, to discover what ‘works’, to discover possibly ‘newto-the-world’ mind-sets, and when possible iterate rapidly across a series of studies to fine tune messages [14,29,30.] Figure 1. Example of a vignette for the diabetes study The methods of Mind Genomics enjoy a long history. Psychologists and marketers have known for decades that the everyday experience of people is not easily uncovered by the conventional scientific method of isolate and then study. For some phenomenon, such isolation works very well to help the researcher understand the phenomenon. The everyday experience of people, the world of normal behavior where Howard Moskowitz (2019) Messages about Diabetes: A Mind Genomics Exploration of Communicating for Medicine & Public Health Endocrinol Diabetes Metab J, Volume 3(5): 3–13, 2019 diabetes is a relevant issue, cannot be easily understood by isolating variables in a clinical way. Rather, it is important to simulate the compound and complex nature of experience, where an individual is presented with many stimuli of different types, all competing for attention. To this end, experimental design of ideas was promoted by pioneer researchers in the world of marketing, Professors Paul Green and Jerry Wind, at the Wharton School of the University of Pennsylvania [31,32] It is their pioneering which has stimulated the research in this paper, albeit the topic has changed from issues in marketing to issues in public health, namely diabetes. It is important to keep in mind that Mind Genomics studies do not purport to be the ultimate in terms of what works in communication of a topic. Rather, each Mind Genomics study provides a wealth of information in and of itself, as well as a platform both for archiving scie
关于糖尿病的信息:医学和公共卫生交流的思维基因组学探索
2型糖尿病是21世纪的流行病,但人们对其风险的认识很低。我们提出了一项调查关于糖尿病的信息,与受访者产生共鸣。该方法使用实验设计的信息组合,每个应答者都是独一无二的,并且这些信息以防止应答者“玩弄”实验的方式出现。每个应答者为消息的重要性和对消息的响应时间生成一个唯一的系数模式。这项研究提出了三种心态:只关注患者;医生是知识的源泉;在他人的帮助下专注于管理。)我们提出了PVI,个人观点标识符,允许研究人员为每个受访者识别适当的令人信服的信息,他们首先被PVI分配到三种心态之一。心智基因组学研究为卫生界提供了一个易于使用的系统,用于在与健康相关的情况下理解和部署令人信服的信息,并且可以作为一个持续的工作工具,用于一般人群的健康维护。人们只需要打开任何医学杂志来阅读有关糖尿病的一个或另一个方面的医学问题。大众媒体,尤其是网络,充斥着关于糖尿病问题的故事,报纸上充斥着关于糖尿病作为迫在眉睫的社会灾难所涉及的具体问题的最新信息,杂志上充斥着关于个人遭遇糖尿病的故事,对于那些在网络上无数关于预防糖尿病该做什么不该做什么的广告。糖尿病作为一个讨论问题的绝对普及证明了人们越来越认识到这一发展中的社会祸害。2型糖尿病已被公认为21世纪的全球性流行病。糖尿病是全球第七大死亡和残疾原因。1990年至2013年期间,糖尿病导致的残疾大幅增加,特别是在15-69岁的人群中;成年男性的年龄标准化患病率从4.3%增加到9%,成年女性的年龄标准化患病率从5%增加到8%,增加了60%。糖尿病患者面临发生一系列危及其健康、功能和生存的并发症的风险。糖尿病在全球范围内呈上升趋势。2013年,130个国家的3.82亿人患有糖尿病。据估计,到2030年,糖尿病患者人数将增加到5.52亿,到2035年,糖尿病患者人数将增加到5.92亿(5-7)。尽管有这些令人担忧的数据,但只有少数几个国家,主要是西欧国家,似乎有机会在2030年之前遏制糖尿病的增长。与糖尿病相关的医疗支出造成了经济负担。根据世卫组织的一般卫生支出数字和2015年bbb的数据,184个国家的流行病学和经济数据表明,全球直接成本为1.31万亿美元。此外,糖尿病引起的过早死亡和合并症的间接成本占总负担的35%,美国是全球糖尿病成本的最大贡献者。II型糖尿病是由肥胖、久坐不动的生活方式、饮食、吸烟、身体和情绪压力等因素引起的,这些因素是可以改变的[11,12]。针对可改变的危险因素的干预措施可以预防或延迟糖尿病的发病,但对糖尿病风险的认识较低。糖尿病给人类带来的痛苦以及糖尿病给各国卫生系统带来的经济负担,使糖尿病成为全球防治这一疾病的一个紧迫问题。教育,尤其是有效的沟通,是至关重要的。当人们能够有效地接受有关风险和可以改变的可改变因素的教育时,就有可能减少糖尿病的影响。教育的一个结果是,那些认为自己有患糖尿病风险的人可能更清楚该做什么,更有可能继续努力降低患糖尿病的风险。遗憾的是,很少有人关注如何有效地宣传糖尿病的风险[1,12]。为了保持敏感和有效,有关风险意识的信息需要通过框架、叙事影响或视觉图像等方式进行适当塑造。这些信息应该Howard Moskowitz(2019)关于糖尿病的信息:医学与公共卫生沟通的心理基因组学探索[J].糖尿病杂志,vol . 3(5): 2-13, 2019承认个人在采取健康行为中的作用,并有意识地避免激活负面刻板印象或引起对信息来源的愤怒[13]。 有效的信息传递将使卫生专业人员和卫生政策制定者能够根据样本的思维方式细分,为人口中的每个人确定和使用最有效的信息。我们如何理解心理,并有效地提高风险意识?正式的统计数据无法说明人们的“感受”,以及人们的“反应”。更温和的定量方法提供了其他观点。心智基因组学是一种被最好地描述为“心智制图”的方法,它研究对日常生活经验的不同方面的反应[14-16]。心智基因组学绘制一种体验,识别其不同的方面,确定人们参与的方面,以及每个方面对每个人的重要性[14,17 - 22]。通过处理人们对日常体验元素的反应,以及人们对这些元素的反应,心智基因组学揭示了人们对体验细节的反应,观察细微差别,从而考虑到体验的丰富性。思维基因组学是一门实证科学,它根据重要性绘制经验的各个方面,并根据不同的观点(即所谓的思维模式)对不同的人群进行细分。这项心智基因组学研究确定了有效的信息来提高人们对糖尿病风险的认识,通过不同的心态来观察一般人群,以及每种心态下哪些有效(哪些无效)。在非常实际的层面上,在医学和非医学领域,人们应该说些什么来提醒人们注意糖尿病的潜在问题?为了预防糖尿病,我们该说些什么来指导人们采取正确的行为,并鼓励他们呢?而且,如果有人对当前的信息进行测试,那么今天的信息的内容是否能在普通消费者的脑海中引起共鸣?我们一定要通过恐吓让人们过上更好的生活吗?(23日)。最后,作为介绍的一部分,我们能否识别不同类型的人,回应不同的信息。我们从大众媒体上得知,有太多的选择和相应的选择悖论。例如,在食品领域,我们现在从科学和市场上都知道,人们对产品有不同的偏好,并且会被他们喜欢的东西所吸引,拒绝他们不喜欢的东西。例如,Prego就是这样一种现象,一种产品曾经出现在一个SKU(商店管理单位),但现在扩散到十几个,每年都有不同的品种进入和退出市场。我们是否也有同样的偏好分布,不是对实物食品,而是对信息,比如警告我们糖尿病的信息类型?所使用的方法被称为思维基因组学,这是一种实验设计形式,其中信息被组合成简短,易于阅读的小片段,如本研究图1所示。这些信息是通过苏格拉底式的方法来发展的:选择一个主题,提出四个相关的问题,“讲述一个故事”,为每个问题提供四个答案,并测试这些答案的组合。Mind Genomics,基于实验设计[28]的统计严谨性,结合网络上简单的组合测试,创造了一种快速、简单、负担得起、迭代和可扩展的方法。我们的目标是与小型的、具有成本效益的受访者群体(大型在线小组的成员)合作,并以迭代的方式探索不同的信息,发现什么是“有效的”,发现可能的“新世界”思维模式,并在可能的情况下快速迭代一系列研究以微调信息[14,29,30]。图1。糖尿病研究的小插图示例心灵基因组学的方法有着悠久的历史。心理学家和市场营销者几十年前就知道,人们的日常经验不容易被传统的科学方法所揭示。对于某些现象,这种隔离可以很好地帮助研究人员理解现象。Howard Moskowitz(2019)关于糖尿病的信息:医学与公共卫生交流的思维基因组学探索内分泌糖尿病杂志,第3卷(5):3 - 13,2019糖尿病是一个相关问题,不能通过临床方式孤立变量来轻易理解。相反,模拟经验的复合性和复杂性是很重要的,在这种情况下,个体会受到许多不同类型的刺激,它们都在争夺注意力。为此,理念的实验设计是由营销学领域的先驱研究者,宾夕法尼亚大学沃顿商学院的Paul Green教授和Jerry Wind教授推动的[31,32]。正是他们的开创性激发了本文的研究,尽管主题已经从营销问题转变为公共卫生问题,即糖尿病问题。 重要的是要记住,心灵基因组学的研究并不声称是在一个主题的交流中起作用的最终结果。相反,每一项心智基因组学研究本身都提供了丰富的信息,同时也提供了一个存档信息的平台
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