Patient Satisfaction in a Multidisciplinary Multiple Sclerosis Care Unit: A Swiss Single-centre Study

Maha Wybitul, H. Njago, Agata Luczkiewicz, H. Pihan
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Abstract

Introduction: Multiple sclerosis (MS) is an immune-mediated neurodegenerative disease. Patients are commonly diagnosed when they are between 20 to 50 years and require life-long treatment. Appropriate treatment is complex and involves a wide range of professional disciplines and expertise. This multifariousness highlights the need for multidisciplinary MS care units that offer a comprehensive and well-managed treatment approach. Such care units would enable (1) time-efficient organization and coordination, (2) better inter-, intradisciplinary and patient communication, (3) neurologists, nurses and therapists specialized in MS and (4) formalized diagnostic workup procedures and protocols for the initiation and follow-up of disease-modifying therapies. Methods: The current single-centre pilot study evaluated such a multidisciplinary MS care unit by measuring patient satisfaction and quality of life prior to and after the reorganization of a Swiss clinical centre. Results: A significant improvement in patient satisfaction was seen after the reorganization of the Swiss clinical centre into an MS centre, and quality of life was maintained throughout. Conclusion: This study exemplifies the importance of MS-specialized care and encourages further longitudinal, large-scale multicentre studies.
多学科多发性硬化症护理单位的患者满意度:瑞士单中心研究
简介:多发性硬化症(MS)是一种免疫介导的神经退行性疾病。患者通常在20至50岁之间被诊断出来,需要终身治疗。适当的治疗是复杂的,涉及广泛的专业学科和专门知识。这种多样性强调需要多学科的多发性硬化症护理单位,提供全面和管理良好的治疗方法。这样的护理单位将实现(1)高效的组织和协调,(2)更好的学科间、学科内和患者沟通,(3)专攻多发性硬化症的神经科医生、护士和治疗师,以及(4)正式的诊断检查程序和疾病改善治疗的开始和随访协议。方法:目前的单中心试点研究通过测量瑞士临床中心重组前后患者满意度和生活质量来评估这样一个多学科的MS护理单位。结果:在瑞士临床中心重组为MS中心后,患者满意度显著提高,生活质量始终保持不变。结论:本研究证明了ms专科护理的重要性,并鼓励进一步的纵向、大规模的多中心研究。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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