Impact of school participation on quality of life of Brazilian children with cerebral palsy

Lígia Maria Presumido Braccialli, M. Z. Silva, A. C. Braccialli, A. N. Sankako, Rita de Cássia Tibério Araújo
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引用次数: 12

Abstract

Abstract The study aimed to analyze the impact of school participation on quality of life of Brazilian children with cerebral palsy. Participants of the study were primary caregivers of children with CP: 39 caregivers of children not attending regular or special school and 74 caregivers of children attending regular or special school. Children with CP, including males and females, were between 4 and 12 years old. Data collection was carried out through individual interviews and application of the questionnaire Cerebral Palsy Quality of Life Questionnaire for Children CP QOL-Child (4–12 years). There was a significant difference in quality of life between the group of children attending school and the group not attending school for the Functioning Domains (p=0.0014), participation and physical health (p=0.0277) and emotional well-being (p=0.05). The worst score was obtained for the pain and impact of disability domain and impact of disability for both groups. We also found significant difference in the distribution of quality of life between genders. The results indicated that the opportunity to experience school has a positive impact on the quality of life of children with cerebral palsy in relation to functioning, participation and physical health and emotional well-being, regardless of gender and age.
学校参与对巴西脑瘫儿童生活质量的影响
摘要本研究旨在分析学校参与对巴西脑瘫儿童生活质量的影响。该研究的参与者是CP儿童的主要照顾者:39名非普通或特殊学校儿童的照顾者和74名普通或特殊学校儿童的照顾者。患有CP的儿童,包括男性和女性,年龄在4到12岁之间。通过个体访谈和应用《脑瘫儿童生活质量问卷(CP QOL-Child, 4-12岁)》进行数据收集。上学儿童组与未上学儿童组的生活质量(p=0.0014)、参与和身体健康(p=0.0277)以及情绪健康(p=0.05)存在显著差异。两组在疼痛和残疾领域的影响以及残疾的影响方面得分最低。我们还发现,男女之间的生活质量分布存在显著差异。结果表明,无论性别和年龄,体验学校生活的机会对脑瘫儿童的生活质量在功能、参与、身体健康和情感福祉方面都有积极影响。
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