Experience and Educational Needs of Arab Parental Caregivers Regarding their Children Newly Diagnosed with Type 1 Diabetes in Saudi Arabia: A Qualitative Study

IF 0.8 Q4 NURSING

Home Health Care Management and Practice Pub Date : 2023-08-01 DOI:10.1177/10848223221134129

M. Yacoub, K. Rosengren, W. D'emeh

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引用次数: 1

Abstract

Type 1 diabetes (T1DM) is a common chronic health condition in children that necessitates close monitoring and care. Parents face numerous challenges when caring for children with T1DM, particularly at home owing to self-care. There is little information available about Arab parents’ experiences and educational needs when caring for children with TIDM. The purpose of this study was to explore the experiences and educational needs of Arab parental caregivers in Saudi Arabia who live with and care for children diagnosed with T1DM. An inductive qualitative descriptive design was used in this study. The data were amassed over a 4 month period through audio-recorded semi-structured interviews with 16 Arab parents of children aged 18 years and under who had been diagnosed with T1DM within the previous 6 months. Data were analyzed through a qualitative content analysis. The results could be classified into 3 categories related to the parents’ experience of caring for a child newly diagnosed with T1DM and their educational needs and can be described as follows: (1) management of uncertainty regarding T1DM; (2) management of new daily life situations; and (3) self-care management within the family. The Arab parents of children with T1DM accentuated the need for continuous professional support to manage uncertainty due to changes in everyday life situations. The findings confirmed the significance of culturally and contextually relevant education regarding T1DM for parents, children, and school personnel. Educational interventions and support in the community are recommended to improve daily life situations for families and children with T1DM.

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沙特阿拉伯新诊断为1型糖尿病儿童的阿拉伯父母照顾者的经验和教育需求:一项定性研究

1型糖尿病(T1DM)是儿童中一种常见的慢性健康状况，需要密切监测和护理。父母在照顾T1DM儿童时面临着许多挑战，特别是在家中，由于自我照顾。关于阿拉伯父母在照顾患有TIDM的儿童时的经历和教育需求的信息很少。本研究的目的是探讨沙特阿拉伯与诊断为T1DM的儿童一起生活和照顾的阿拉伯父母照顾者的经历和教育需求。本研究采用归纳定性描述设计。通过对16位18岁及以下儿童的阿拉伯父母的录音半结构化访谈，收集了4个月的数据，这些儿童在过去6个月内被诊断为T1DM。通过定性内容分析对数据进行分析。结果与家长对新诊断T1DM患儿的照顾经历和教育需求相关，可分为3类，主要表现为:(1)对T1DM不确定性的管理;(2)日常生活新情况的管理;(3)家庭内部的自我保健管理。患有T1DM儿童的阿拉伯父母强调需要持续的专业支持，以应对日常生活环境变化带来的不确定性。研究结果证实了与T1DM相关的文化和背景教育对家长、孩子和学校人员的重要性。建议在社区进行教育干预和支持，以改善患有T1DM的家庭和儿童的日常生活状况。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Home Health Care Management and Practice NURSING-

CiteScore

2.30

自引率

18.20%

发文量

期刊介绍： Home Health Care Management & Practice is a comprehensive resource for clinicians, case managers, and administrators providing home and community based health care. Articles address diverse issues, ranging from individual patient care and case management to the human resource management and organizational operations management and administration of organizations and agencies. Regular columns focus on research, legal issues, psychosocial perspectives, accreditation and licensing, compliance, management, and cultural diversity. Specific topics include treatment, care and therapeutic techniques, cultural competence, family caregivers, equipment management, human resources, home health center.