The “Noncompliant” Transplant Patient: A Persistent Ethical Dilemma

S. S. Edwards
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Abstract

Journal of Transplant Coordination, Vol. 9, Number 4, December 1999 (eg, throwing) potentially infectious blood or body fluids, or even attacking providers and/or other patients. The negative effects of these types of behaviors may be minimal, moderate, or severe; however, in most instances, the effects are felt not only by the patient but by those around the patient as well. When patients act in ways that healthcare providers find undesirable or counterproductive, the provider’s initial impression may be that the patient is simply choosing to be difficult. However, it is important to consider the potential causes for the patient’s behavior. For instance, a patient who is not taking medication properly may have forgotten the doctor’s instructions. A patient may not be able to read and may be too embarrassed to ask anyone else for assistance, or may choose not to take the medication in the way it was prescribed (or at all) because of the unpleasant side effects it causes. A heart patient may not be following the prescribed “heart healthy” diet because of certain social or cultural norms in the community. Perhaps the prescribed diet is too expensive in light of the fact that the rest of the family won’t eat it and the patient cannot afford to buy additional food. In some cases, the problem may have more to do with distrust of the healthcare system or of specific providers; patients may simply not believe what the physician or other provider has told them or may be worried that they are being lied to or taken advantage of by the provider. And, of course, it is always possible that in The “noncompliant” transplant patient: a persistent ethical dilemma
“不服从”移植病人:一个持续的伦理困境
移植协调杂志,第9卷,第4期,1999年12月(例如,投掷)可能具有传染性的血液或体液,甚至攻击提供者和/或其他病人。这些行为的负面影响可能是轻微的、中度的或严重的;然而,在大多数情况下,这种影响不仅会被患者感受到,而且患者周围的人也会感受到。当患者的行为方式不受医疗保健提供者的欢迎或适得其反时,提供者的最初印象可能是患者只是选择困难。然而,考虑患者行为的潜在原因是很重要的。例如,一个没有正确服药的病人可能已经忘记了医生的指示。病人可能不识字,不好意思向别人寻求帮助,或者可能因为药物会产生令人不快的副作用而选择不按处方服用药物(或根本不服用)。由于某些社会或文化规范,心脏病患者可能没有遵循规定的“心脏健康”饮食。也许处方的饮食太贵了,因为家里的其他人不会吃,病人也买不起额外的食物。在某些情况下,这个问题可能更多地与对医疗保健系统或特定提供者的不信任有关;患者可能根本不相信医生或其他提供者告诉他们的,或者可能担心他们被欺骗或被提供者利用。当然,在“不服从”的移植病人身上,总是有可能存在一个持续的伦理困境
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