Proposal of indexes to evaluate Family Quality of Life, Partnership, and Family support needs

IF 2.4 Q2 PSYCHOLOGY, MULTIDISCIPLINARY

Revista Iberoamericana de Psicologia y Salud Pub Date : 2016-01-01 DOI:10.1016/j.rips.2015.10.005

Anna Balcells-Balcells , Climent Giné , Joan Guàrdia-Olmos , Jean Ann Summers

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引用次数: 8

Abstract

In recent years, research on the families of persons with Intellectual Disability (ID) has focused on the factors that contribute to the improvement of their Family Quality of Life (FQoL), such as the support they get and their partnership with professionals. However, due to the complexity of the variables related to FQoL and support needs and adequacy, measuring these constructs is difficult and multidimensional. To do this, the aim of this study is to generate new indexes through a series of instruments and assess their feasibility to improve the evaluation process and not reduce the situation to single measurements. We applied 3 instruments adapted to the Spanish population – Service Inventory, Beach Center Family-Professional Partnership Scale, and Beach Center FQOL – to a sample of 202 families of children with ID and we studied the indexes. The results show that the new indexes were designed to make FQoL measurements more easily manageable and interpretable. In fact, we found a statistical significant correlation between partial indexes (p < .001) in relation to the total score and very high sensibility of the indexes in relation to the degree of disability (p < .001). They also facilitate conducting complex analyses without having to discard any relevant measurement dimension.

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家庭生活品质、伙伴关系及家庭支持需求之评估指标建议

近年来，对智障人士家庭的研究主要集中在改善智障人士家庭生活质素的因素，例如他们所获得的支援，以及他们与专业人士的合作。然而，由于与FQoL和支持需求和充分性相关的变量的复杂性，测量这些结构是困难的和多维的。为此，本研究的目的是通过一系列仪器产生新的指标，并评估其可行性，以改进评估过程，而不是将情况减少到单一的测量。我们采用3种适用于西班牙人群的工具-服务量表、比奇中心家庭-专业伙伴关系量表和比奇中心家庭生活质量量表-对202个ID儿童家庭进行了研究。结果表明，新指标的设计使FQoL测量更容易管理和解释。事实上，我们发现部分指标之间存在统计学上显著的相关性(p <.001)，对残疾程度的敏感性非常高(p <措施)。它们还有助于进行复杂的分析，而不必丢弃任何相关的测量维度。

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来源期刊

Revista Iberoamericana de Psicologia y Salud PSYCHOLOGY, MULTIDISCIPLINARY-

CiteScore

4.20

自引率

26.10%

发文量

期刊介绍： Slide background NÚMEROS ANTERIORES Todos los números publicados de la Revista Iberoamericana de Psicología y Salud. NORMAS DE PUBLICACIÓN VERSIÓN EN INGLÉS La Revista Iberoamericana de Psicología y Salud, revista oficial de la Federación Iberoamericana de Asociaciones de Psicología (FIAP) y de la Sociedad Universitaria de Investigación en Psicología y Salud (SUIPS) publica artículos bibliométricos y empíricos así como revisiones meta-analíticas sobre tópicos relacionados con la Psicología y las Ciencias de la Salud. La revista publica originales en español, portugués o inglés. La revista está dirigida a investigadores, académicos y profesionales, especialmente de la comunidad Iberoamericana, de la Psicología y de las Ciencias de la Salud (e.g., medicina, enfermería, fisioterapia) con el objetivo general de servir como puente entre estas áreas y transferir conocimiento basado en evidencia científica a los académicos y profesionales en tiempo real.