Why Keep it a Secret? Implications of Disclosure of a Diagnosis of Autism for Children and Families

Abstract

There is a paucity of research on the personal experiences of individuals regarding disclosure of diagnosis of autism in India. In this case report, we share the journey of a 19-year-old male, who learned about his high functioning autism diagnosis when he was diagnosed at 8 years of age, to highlight how timely disclosure can lead to acceptance and growth. Management focused on working with the child’s areas of strengths rather than deficits. The parents were supportive and readily shared his diagnosis with family and school authorities. They ascribed to the neurodiversity view and encouraged their son to take pride in being who he was and not try to be like his nonautistic peers. The latest follow-up was done at age 19 and the child was reported to be well adjusted, had excelled in his schoolwork, and aspired for a career in computer animation. Efforts to focus on the neurodiversity paradigm and reducing negative beliefs should also be targeted to reduce the stigma of autism and increase its acceptance among families and the community.