Prejudice, vulnerability, accession process, religiosity regarding the life routine with AIDS: life stories

Deyla Moura Ramos Isoldi, Clélia Albino Simpson, Francisco Arnoldo Nunes de Miranda, Felismina Mendes, Antônia Lêda Oliveira Silva, Francisca Patrícia Barreto de Carvalho, Amélia Carolina Lopes Fernandes, Fábio Claudinei Da Costa Pereira
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引用次数: 1

Abstract

Objective: To communicate life stories of people who suffer from acquired immunodeficiency-syndrome with a higher vulnerability registered at the Municipal Secretary of Social Assistance and the diagnostic’s influence on their daily routine. Method: Descriptive and exploratory study based on oral life history. Thirteen people with AIDs took part in the study via a semi-structured interview. The narratives were analyzed using Bardin’s thematic content analysis. Results: Three thematic axes emerged from Bardin’s content analysis: prejudice and discrimination regarding the life routine with aids; Reaction when facing the diagnostic and the adhesion process for the antiretroviral treatment; Confrontation of religion and religiousness on people with aids. Conclusion: The people living with aids, a chronic and stigmatizing disease, need the support of multidisciplinary teams and an improvement in relation to the access, the coverage and the meaning assigned to the disease, besides a better quality of life and social assistance. We conclude that religion did not contribute to facing these people’s conditions. It brought blame, incorrect information that may impair the treatment and their follow-up. One infers that health education regarding HIV/AIDS needs to be remodeled on all of society’s segments.
对艾滋病患者日常生活的偏见、脆弱性、加入过程、宗教信仰:生活故事
目的:交流在市社会援助秘书处登记的易受感染的后天免疫机能丧失综合症患者的生活故事,以及诊断对他们日常生活的影响。方法:以口述生活史为基础进行描述性和探索性研究。13名艾滋病患者通过半结构化访谈参与了这项研究。使用巴丁的主题内容分析法对这些叙述进行了分析。结果:Bardin的内容分析产生了三个主题轴:对艾滋病患者日常生活的偏见和歧视;在面对诊断和粘附过程时的反应,进行抗逆转录病毒治疗;宗教和宗教信仰对艾滋病患者的影响。结论:艾滋病是一种慢性和污名化疾病,患者除了需要更好的生活质量和社会援助外,还需要多学科团队的支持,并在获得、覆盖和赋予疾病的意义方面得到改善。我们得出的结论是,宗教对面对这些人的处境没有任何帮助。它带来了指责,错误的信息可能会影响治疗和他们的后续行动。有人推断,有关艾滋病毒/艾滋病的健康教育需要在社会各阶层进行改造。
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