Development and Content Validation of End of Treatment Questionnaires for Children With Cancer

IF 16.4 1区化学 Q1 CHEMISTRY, MULTIDISCIPLINARY

Accounts of Chemical Research Pub Date : 2020-03-01 DOI:10.1177/1043454219878392

Mary Conway Keller, T. Ruiz, Andrew Needham, Courtney King, L. Hart, E. Holden, R. Lucas

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引用次数: 2

Abstract

Purpose: To describe the development and content validation of measures to assess the psychoeducational needs of children, adolescents/young adults (AYAs), and their parents at the end of successful treatment for cancer. Method: Professional experts, which included pediatric oncology nurses and advanced practice registered nurses, conducted a systematic review of the literature to determine specific end of treatment (EOT) needs of children and AYAs with cancer and their parents and evaluate available tools to measure these needs. From this review, two EOT questionnaires were initially developed. Oncology Family Advisory Board (FAB) members served as experiential experts in refining and validating these questionnaires. FAB members participated in a content validation process, rating questionnaires online, and subsequently participating in a focus group to establish content validity (n = 6). Results: Three EOT questionnaires were ultimately developed. The Child/AYA questionnaire was divided into two separate measures for developmental and literacy considerations. The Parent/Caregiver and the AYA questionnaires each contain 38 items with a content validity index score of 100%. The Child questionnaire contains 37 items with a content validity index score of 100%. Conclusion: Content validity was established for three EOT questionnaires, each of which has the potential to elicit information regarding needs and potential gaps in services perceived by childhood cancer survivors and their parents. Further psychometric testing is needed to determine stability (test–retest reliability) and construct validity of the questionnaires.

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癌症儿童治疗结束问卷的编制与内容验证

目的：描述癌症治疗结束时评估儿童、青少年/年轻人（AYAs）及其父母心理教育需求的措施的制定和内容验证。方法：包括儿科肿瘤科护士和高级执业注册护士在内的专业专家对文献进行了系统回顾，以确定癌症儿童和AYA及其父母的具体治疗结束（EOT）需求，并评估测量这些需求的可用工具。根据这篇综述，最初编制了两份EOT问卷。肿瘤家族咨询委员会（FAB）成员在完善和验证这些问卷时充当了经验专家。FAB成员参与了内容验证过程，在线对问卷进行评分，随后参加了一个焦点小组，以确定内容的有效性（n=6）。结果：最终编制了三份EOT问卷。儿童/AYA问卷分为两个单独的衡量标准，分别用于发展和识字。家长/看护人和AYA问卷各包含38个项目，内容有效性指数得分为100%。儿童问卷包含37个项目，内容有效性指数得分为100%。结论：建立了三份EOT问卷的内容有效性，每一份问卷都有可能引发关于癌症儿童幸存者及其父母所感知的服务需求和潜在差距的信息。需要进一步的心理测量测试来确定问卷的稳定性（测试-再测试可靠性）和结构有效性。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Accounts of Chemical Research 化学-化学综合

CiteScore

31.40

自引率

1.10%

发文量

312

审稿时长

2 months

期刊介绍： Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.