The impact of epilepsy on adolescence: a quali-quantitative investigation using focus group

IF 1.8 Q3 PSYCHOLOGY, CLINICAL

Mediterranean Journal of Clinical Psychology Pub Date : 2020-08-13 DOI:10.6092/2282-1619/MJCP-2428

B. Ragni, S. Cappelletti, S. D. Stasio, I. Tondo, N. Specchio, F. Vigevano, S. Gentile

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引用次数: 3

Abstract

Adolescents with epilepsy live with a chronic illness that influences their relationships with peers and the development of their autonomy. Questions have been raised as to whether quantitative research approaches can adequately capture patients' experiences of living with epilepsy. By comparison, qualitative research methodologies support a more in-depth exploration of patients' personal experiences, enabling epilepsy researchers to obtain meaningful and valuable insights into patients' unique point of view. Participants in the present study were eight adolescents with epilepsy (five females, three males) aged between 15 and 20 years. The data were collected via a standard focus group procedure and self-report measures (Patient Health Questionnaire for Depression; PHQ-9 ; Generalized Anxiety Disorder Scale; GAD-7 and Quality of Life Inventory for Adolescents; QOLIE-AD-48 ) . Qualitative analysis of the focus group data yielded four key categories defining the psychosocial impact of epilepsy on adolescence: "Peer relationships and acceptance", "Autonomy", "School," and "Future". These outcomes suggest that epilepsy research may be significantly enhanced by the use of mixed-method approaches: adopting qualitative techniques such as focus group discussions to explore epileptic adolescents' thoughts and feelings and the psychosocial impact of epilepsy during adolescence, can inform clinical practice and promote the empowerment and quality of life of teenagers with epilepsy.

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癫痫对青少年的影响：焦点小组定量研究

患有癫痫的青少年患有慢性疾病，这种疾病会影响他们与同龄人的关系以及他们自主性的发展。人们对定量研究方法是否能够充分捕捉癫痫患者的生活经历提出了疑问。相比之下，定性研究方法支持对患者个人经历进行更深入的探索，使癫痫研究人员能够对患者的独特观点获得有意义和有价值的见解。本研究的参与者是8名患有癫痫的青少年（5名女性，3名男性），年龄在15至20岁之间。数据是通过标准的焦点小组程序和自我报告措施收集的（抑郁症患者健康问卷；PHQ-9；广泛性焦虑症量表；GAD-7和青少年生活质量量表；QOLIE-AD-48）。对焦点小组数据的定性分析得出了四个关键类别，定义了癫痫对青少年的心理社会影响：“同伴关系和接受”、“自主性”、“学校”和“未来”。这些结果表明，使用混合方法可能会显著加强癫痫研究：采用定性技术，如焦点小组讨论，探讨癫痫青少年的思想和感受以及癫痫在青春期的心理社会影响，可以为临床实践提供信息，并促进癫痫青少年的赋权和生活质量。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Mediterranean Journal of Clinical Psychology PSYCHOLOGY, CLINICAL-

CiteScore

4.10

自引率

53.80%

发文量

审稿时长

4 weeks

期刊介绍： The MJCP is an Open Access Peer-Reviewed International Journal in Clinical Psychology. MJCP accepts research related to innovative and important areas of clinical research: 1. Clinical studies related to Clinical Psychology, 2. Psychopathology and Psychotherapy; 3. Basic studies pertaining to clinical psychology field as experimental psychology, psychoneuroendocrinology and psychoanalysis; 4. Growing application of clinical techniques in clinical psychology, psychology of health, clinical approaches in projective methods; 5. Forensic psychology in clinical research; 6. Psychology of art and religion; 7. Advanced in basic and clinical research methodology including qualitative and quantitative research and new research findings.