People with a mild intellectual disability: inclusive research lessons

IF 2.4 4区 管理学 Q3 BUSINESS
Elias Kyriazis, Alan Pomering, Heather Marciano
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引用次数: 1

Abstract

In this paper, we present guidelines for researchers working with individuals with mild intellectual disability (MID) based on the challenges and learnings from our University of Wollongong (UOW) Community Engagement Grant (2010) project where we collaborated with representatives from the Disability Sector, Cancer Council NSW and the vulnerable community of people with MID to overcome the difficulties that they face in interpreting mainstream cancer prevention messaging and take ownership of their skin cancer checking behaviour by using co-created resources that could be easily understood and acted upon by the target audience. As a result of our project, nearly 20% of our vulnerable population sample (employees of Greenacres, a disability employment provider) checked themselves for skin cancer spots for the first time after having been given a “What’s that Spot?” book and accompanying resources (bathroom mirror stickers, hand held mirrors). The successful uptake can be directly attributed to the researchers putting aside their assumptions and overcoming the biases (conscious and unconscious) from their academic training to partner with the target population in a respectful manner and genuinely embrace the concept of inclusive research, ensuring that this overlooked and vulnerable group are afforded cancer prevention resources that work for them. This inclusive approach is evidenced by the co-creation of our “thumbs up scale” to overcome the limitations of traditional Likert scale use for our target population. Further, the generation of “trust” between researchers, participants and necessary carers should be at the forefront of all research methodology designs for those wishing to conduct research with members of the MID community.
轻度智障人士:包容性研究课程
在这篇论文中,我们根据卧龙岗大学(UOW)社区参与补助金(2010)项目的挑战和经验教训,为研究轻度智力残疾(MID)的研究人员提供了指导方针,我们在该项目中与残疾部门的代表合作,新南威尔士州癌症委员会和MID弱势群体,以克服他们在解释主流癌症预防信息时面临的困难,并通过使用目标受众易于理解和采取行动的共同创建的资源,掌握他们的皮肤癌症检查行为。由于我们的项目,近20%的弱势人群样本(残疾就业提供者Greenacres的员工)在获得“What's that Spot?”书籍和配套资源(浴室镜子贴纸、手持镜子)后,首次检查了自己的皮肤癌症斑点。成功的吸收可以直接归功于研究人员抛开他们的假设,克服学术训练中的偏见(有意识和无意识),以尊重的方式与目标人群合作,真正接受包容性研究的概念,确保这一被忽视和易受伤害的群体获得对他们有效的癌症预防资源。这种包容性的方法通过共同创建我们的“竖起大拇指量表”来证明,以克服我们的目标人群使用传统Likert量表的局限性。此外,对于那些希望与MID社区成员一起进行研究的人来说,在研究人员、参与者和必要的护理人员之间建立“信任”应该是所有研究方法设计的首要任务。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
6.00
自引率
6.70%
发文量
38
期刊介绍: The International Journal of Market Research is the essential professional aid for users and providers of market research. IJMR will help you to: KEEP abreast of cutting-edge developments APPLY new research approaches to your business UNDERSTAND new tools and techniques LEARN from the world’s leading research thinkers STAY at the forefront of your profession
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