Musical preferences of people with profound intellectual and multiple disabilities: A participatory design with proxies

IF 1.2 4区医学 Q3 EDUCATION, SPECIAL

British Journal of Learning Disabilities Pub Date : 2023-03-20 DOI:10.1111/bld.12524

Rosie Rushton, Lila Kossyvaki, Emmanouela Terlektsi

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Abstract

Background

Inclusive research advocates for the involvement of people with intellectual disabilities to be more than passive participants within the research process.

Methods

This study used a participatory design with proxies to consult with 13 people with profound intellectual and multiple disabilities, on their musical preferences. Four instrumental listening tracks were created for consideration. The expected outcome was that people with profound intellectual and multiple disabilities would contribute to the codesign and development of a Musical Play framework. The study took place in England.

Findings

Proxy reports suggested that elements of music such as the tempo, tonality and instrumentation influenced the participants' responses. Responses were mixed across all tracks, indicating that the musical preferences of people with profound intellectual and multiple disabilities are variable and individualised.

Conclusion

Further exploration of how people with profound intellectual and multiple disabilities can contribute to inclusive research is recommended.

Abstract Image

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重度智力残疾和多重残疾人群的音乐偏好：一种带有代理的参与式设计

包容性研究倡导智障人士在研究过程中不仅仅是被动的参与者。方法采用参与式设计，对13例重度智力障碍和多重残疾患者的音乐偏好进行问卷调查。创作了四首器乐聆听曲目供参考。预期的结果是，有严重智力残疾和多重残疾的人将为共同设计和开发音乐剧框架做出贡献。这项研究在英国进行。代理报告表明，音乐的节奏、调性和乐器等元素影响了参与者的反应。所有曲目的反应都是不同的，这表明患有严重智力残疾和多重残疾的人的音乐偏好是可变的和个性化的。结论建议进一步探索重度智力残疾和多重残疾人士如何为包容性研究做出贡献。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

British Journal of Learning Disabilities EDUCATION, SPECIAL-

CiteScore

2.30

自引率

20.00%

发文量

期刊介绍： The British Journal of Learning Disabilities is an interdisciplinary international peer-reviewed journal which aims to be the leading journal in the learning disability field. It is the official Journal of the British Institute of Learning Disabilities. It encompasses contemporary debate/s and developments in research, policy and practice that are relevant to the field of learning disabilities. It publishes original refereed papers, regular special issues giving comprehensive coverage to specific subject areas, and especially commissioned keynote reviews on major topics. In addition, there are reviews of books and training materials, and a letters section. The focus of the journal is on practical issues, with current debates and research reports. Topics covered could include, but not be limited to: Current trends in residential and day-care service Inclusion, rehabilitation and quality of life Education and training Historical and inclusive pieces [particularly welcomed are those co-written with people with learning disabilities] Therapies Mental health issues Employment and occupation Recreation and leisure; Ethical issues, advocacy and rights Family and carers Health issues Adoption and fostering Causation and management of specific syndromes Staff training New technology Policy critique and impact.