FAMILY INTERACTION AND SOCIAL STIGMATIZATION OF PEOPLE LIVING WITH HIV AND AIDS IN PUERTO RICO.

IF 0.1 Q4 SOCIAL WORK
M. Rivera-Díaz, N. Varas-Díaz, M. Padilla, María de Los Ángeles Vargas-Cancel, N. Serrano
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引用次数: 7

Abstract

This article aims to describe the manifestation of HIV stigma in the family context and how this could impact the life of people living with HIV (PLWH). The data derive from a larger phenomenological study addressing manifestations of stigma in the lives of PLWH when interacting with the health sector. Nine focus groups were carried out in 2011 with PLWH (N=67). Eight themes emerged from the qualitative analysis. For the purpose of this article, we focus on the categories related to family dynamics: the negotiation of disclosure and non-disclosure, fear of the HIV virus and family dynamics, and life as a couple. Socio demographic information showed that 53% were between 44 to 54 years old, 80% were single, 51% were male, 42% did not complete a high school diploma, 82% were unemployed. Also, 82% described themselves as religious persons and 41% had lived with HIV for 10 years or less. Qualitative results show stigma is still present in the family context. PLWH experience fear of disclosure, discrimination, avoid initiating families or couple relationships, experience physical and verbal abuse from relatives, and even separation from other family members. After more than 30 years of the ongoing HIV epidemic, stigma is still manifested by family members with detrimental social and medical implications for PLWH. Research and educational efforts should continue addressing manifestations of stigma among family members of PLWH.
波多黎各艾滋病毒和艾滋病感染者的家庭互动和社会污名化。
本文旨在描述艾滋病毒污名在家庭背景下的表现,以及这将如何影响艾滋病毒感染者(PLWH)的生活。这些数据来自一项更大规模的现象学研究,该研究涉及PLWH在与卫生部门互动时生活中的耻辱表现。2011年,对PLWH进行了九个重点小组(N=67)。定性分析提出了八个主题。为了本文的目的,我们重点关注与家庭动态相关的类别:披露和不披露的谈判、对艾滋病毒和家庭动态的恐惧,以及夫妻生活。社会人口统计信息显示,53%的人年龄在44至54岁之间,80%是单身,51%是男性,42%没有完成高中文凭,82%失业。此外,82%的人自称是宗教人士,41%的人感染艾滋病毒的时间不超过10年。定性结果表明,污名化现象在家庭环境中仍然存在。PLWH害怕披露、歧视、避免建立家庭或夫妻关系、遭受亲属的身体和言语虐待,甚至与其他家庭成员分离。在持续30多年的艾滋病毒流行之后,家庭成员仍然表现出耻辱感,对PLWH具有不利的社会和医学影响。研究和教育工作应继续解决PLWH家庭成员中的耻辱表现。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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18 weeks
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