Ruduan Plug, Yan Liang, Aliya Aktau, Mariam Basajja, Francisca Onaolapo Oladipo, M. van Reisen
{"title":"Terminology for a FAIR Framework for the Virus Outbreak Data Network-Africa","authors":"Ruduan Plug, Yan Liang, Aliya Aktau, Mariam Basajja, Francisca Onaolapo Oladipo, M. van Reisen","doi":"10.1162/dint_a_00167","DOIUrl":null,"url":null,"abstract":"Abstract The field of health data management poses unique challenges in relation to data ownership, the privacy of data subjects, and the reusability of data. The FAIR Guidelines have been developed to address these challenges. The Virus Outbreak Data Network (VODAN) architecture builds on these principles, using the European Union's General Data Protection Regulation (GDPR) framework to ensure compliance with local data regulations, while using information knowledge management concepts to further improve data provenance and interoperability. In this article we provide an overview of the terminology used in the field of FAIR data management, with a specific focus on FAIR compliant health information management, as implemented in the VODAN architecture.","PeriodicalId":34023,"journal":{"name":"Data Intelligence","volume":"4 1","pages":"698-723"},"PeriodicalIF":1.3000,"publicationDate":"2022-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"2","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Data Intelligence","FirstCategoryId":"94","ListUrlMain":"https://doi.org/10.1162/dint_a_00167","RegionNum":3,"RegionCategory":"计算机科学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"COMPUTER SCIENCE, INFORMATION SYSTEMS","Score":null,"Total":0}
引用次数: 2
Abstract
Abstract The field of health data management poses unique challenges in relation to data ownership, the privacy of data subjects, and the reusability of data. The FAIR Guidelines have been developed to address these challenges. The Virus Outbreak Data Network (VODAN) architecture builds on these principles, using the European Union's General Data Protection Regulation (GDPR) framework to ensure compliance with local data regulations, while using information knowledge management concepts to further improve data provenance and interoperability. In this article we provide an overview of the terminology used in the field of FAIR data management, with a specific focus on FAIR compliant health information management, as implemented in the VODAN architecture.