The Radboud Biobank: A Central Facility for Disease-Based Biobanks to Optimise Use and Distribution of Biomaterial for Scientific Research in the Radboud University Medical Center, Nijmegen

Q2 Medicine
P. Manders, J. Lutomski, C. Smit, D. Swinkels, G. Zielhuis
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引用次数: 15

Abstract

The Radboud Biobank offers disease-based biobanks a centralized facility to optimize the use and distribution of biomaterial for scientific research. Notably, two population biobanks are also included in this collection. All collections are professionally and sustainably maintained using high-quality and secure standardized protocols for ICT, legal-ethical aspects, sample collection, processing and storage, communication and distribution. The Radboud Biobank includes biomaterial (e.g. DNA, serum, plasma, tissue, urine and faeces – depending on the specific patient group), images, associated clinical data (patient, disease-specific and phenotypic data) and derived information (genotypic data, microarray gene expressions). Patient advocates and other relevant stakeholders are actively involved in the governance of the Radboud Biobank. Funding statement: The Radboud Biobank was implemented by the Radboudumc Executive Board as part of the university research infrastructure. It is a central facility for the Radboudumc, with guaranteed central support for at least 15 years. A governing strategic board, encompassing relevant stakeholder groups, oversees the operations of the Radboud Biobank. Two patient representatives are included in this strategic board, and one holds the position of chairperson.
内梅亨大学医学中心内梅亨生物库:基于疾病的生物库的中心设施,以优化生物材料的使用和分配,用于科学研究
Radboud生物库为基于疾病的生物库提供了一个集中的设施,以优化用于科学研究的生物材料的使用和分配。值得注意的是,两个种群生物库也包括在这个集合中。所有的藏品都是专业和可持续地维护,使用高质量和安全的标准协议,用于信息通信技术、法律和道德方面、样本收集、处理和储存、通信和分发。Radboud生物库包括生物材料(例如DNA、血清、血浆、组织、尿液和粪便——取决于特定的患者群体)、图像、相关临床数据(患者、疾病特异性和表型数据)和衍生信息(基因型数据、微阵列基因表达)。患者权益倡导者和其他相关利益攸关方积极参与Radboud生物银行的治理。资助说明:radbouduc生物库由radbouduc执行委员会作为大学研究基础设施的一部分实施。它是Radboudumc的中心设施,保证得到至少15年的中央支持。由相关利益相关团体组成的管理战略委员会负责监督Radboud生物银行的运营。该战略委员会包括两名患者代表,其中一人担任主席。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Open Journal of Bioresources
Open Journal of Bioresources Biochemistry, Genetics and Molecular Biology-Biochemistry, Genetics and Molecular Biology (miscellaneous)
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审稿时长
14 weeks
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