Information Registry System on Congenital Hypothyroidism: A Systematic Review

IF 0.3 Q4 PEDIATRICS
Morteza Ghasempour, H. Ehtesham, Nooshin Rostampou, Shahram Tahmasbian, L. Shahmoradi
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引用次数: 1

Abstract

Background: Congenital hypothyroidism is the most common congenital disorder of the endocrine system, leading to preventable mental retardation. Objectives: We aimed to evaluate the current status of congenital hypothyroidism information registry systems. Methods: In this systematic review 290 papers identified. A total of 254 articles were screened, of which 17 qualified articles were selected through the databases of Scopus, science direct ProQuest, PubMed, as well as the search engine Google scholar (no restriction on date of publication) up to 2020, were searched. Inclusion criteria were the Articles with the English language that examining information registry systems on congenital hypothyroidism. Articles whose full texts were not accessible, case reports, and letters to the editor had to be excluded. Results: This study showed that the primary goal of nearly half (50%) of the information registry systems for congenital hypothyroidism is to evaluate the efficiency and effectiveness of the screening program. Other information registry systems for congenital hypothyroidism have examined the epidemiology of the disease in 4 studies (23.6%), monitoring iodine deficiency in 3 studies (18%), surveillance disease in 1 study (6%), and describing the clinical and familial features of the patient in 1 study (6%). Conclusions: Few studies have been done on developing information registry systems, and most studies have focused on the use of information systems in this field. Further comprehensive reviews are recommended to investigate the infrastructure of the commission national registry and world network to record information units on congenital hypothyroidism.
先天性甲状腺功能减退症信息登记系统的系统评价
背景:先天性甲状腺功能减退症是最常见的先天性内分泌系统疾病,可导致可预防的精神发育迟缓。目的:我们旨在评估先天性甲状腺功能减退症信息登记系统的现状。方法:在本系统综述中,共鉴定出290篇论文。共筛选了254篇文章,其中17篇合格文章是通过Scopus、science direct ProQuest、PubMed以及搜索引擎Google scholar(不限制发表日期)的数据库筛选到的,截至2020年。纳入标准为检查先天性甲状腺功能减退症信息登记系统的英文文章。全文无法查阅的文章、案例报告和给编辑的信必须被排除在外。结果:这项研究表明,近一半(50%)先天性甲状腺功能减退症信息登记系统的主要目标是评估筛查计划的效率和有效性。先天性甲状腺功能减退症的其他信息登记系统在4项研究中检查了该疾病的流行病学(23.6%),在3项研究中监测了碘缺乏症(18%),在1项研究中监控了疾病(6%),并在1项研究中描述了患者的临床和家族特征(6%)。结论:关于开发信息登记系统的研究很少,大多数研究都集中在信息系统在该领域的使用上。建议进行进一步的全面审查,以调查委员会国家登记处和世界网络的基础设施,以记录先天性甲状腺功能减退症的信息单位。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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