Muhammed Muazzam Hussain, Mohammad Mojammel Hussain Raihan
{"title":"Disadvantage, discrimination, and despair: Parental experiences of caring for children with disability in Bangladesh","authors":"Muhammed Muazzam Hussain, Mohammad Mojammel Hussain Raihan","doi":"10.1111/aswp.12249","DOIUrl":null,"url":null,"abstract":"<p>This paper explored parental experiences of caring for children with disability (CWD) living in the Sylhet city corporation area of Bangladesh. This study applied a qualitative research approach. The purposive snowball sampling method was employed to recruit study participants. Twenty-one in-depth interviews and two focus group discussions with parents of children with physical, hearing, vision, and intellectual disabilities were conducted to learn more about their experiences and identify the difficulties and challenges they confront in their everyday lives. The results showed that respondents experience various disadvantages, for example, treatment-related challenges, financial incapacity, housing, and transportation issues. The study also indicates that parents are subjected to discrimination, experience stress, and tension, and become depressed when they consider the future distressing condition of CWD after their death. Poverty, the societal stigma associated with disability, and a lack of social supports exacerbate parents' mental anguish and limit their ability to care for CWD patients. Therefore, it is recommended to develop new services delivery strategy, including home care, respite care, and monetary transfers for CWD caregivers, as well as community mobilization and inter-professional collaboration, to enhance their current situation and overall well-being.</p>","PeriodicalId":44567,"journal":{"name":"Asian Social Work and Policy Review","volume":"16 1","pages":"80-91"},"PeriodicalIF":1.3000,"publicationDate":"2022-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/aswp.12249","citationCount":"1","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Asian Social Work and Policy Review","FirstCategoryId":"1085","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/aswp.12249","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"SOCIAL WORK","Score":null,"Total":0}
引用次数: 1
Abstract
This paper explored parental experiences of caring for children with disability (CWD) living in the Sylhet city corporation area of Bangladesh. This study applied a qualitative research approach. The purposive snowball sampling method was employed to recruit study participants. Twenty-one in-depth interviews and two focus group discussions with parents of children with physical, hearing, vision, and intellectual disabilities were conducted to learn more about their experiences and identify the difficulties and challenges they confront in their everyday lives. The results showed that respondents experience various disadvantages, for example, treatment-related challenges, financial incapacity, housing, and transportation issues. The study also indicates that parents are subjected to discrimination, experience stress, and tension, and become depressed when they consider the future distressing condition of CWD after their death. Poverty, the societal stigma associated with disability, and a lack of social supports exacerbate parents' mental anguish and limit their ability to care for CWD patients. Therefore, it is recommended to develop new services delivery strategy, including home care, respite care, and monetary transfers for CWD caregivers, as well as community mobilization and inter-professional collaboration, to enhance their current situation and overall well-being.
期刊介绍:
There is a growing recognition that major social trends, such as the process of globalization, rapidly changing demography, increasing psycho-social difficulties in individuals and families, growing economic disparities within and between the nations, and international migration, present important challenges for social policies and social work practices in Asia. It also has become evident that social policy strategies and social work methods must be developed and implemented in the context of Asian region''s own histories, cultures, and unique developmental trajectories in order to respond effectively to those emerging challenges. The Asian Social Work and Policy Review seeks to encourage exchanges of original ideas, rigorous analysis of experiences, innovative practice methods founded on local knowledge and skills of problem solving in the areas of social work and social policy between various countries in Asia.