Growth from Trauma: Gender Differences in the Experience of Cancer and Long-term Survivorship

Karen Powroznik, Irena Stepanikova, K. Cook
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Abstract

Abstract Purpose This research explores how gender influences the experience of cancer care and proposes a new explanation for gender differences in posttraumatic growth among individuals who received blood or marrow transplantation as treatment for lymphoma. Methodology/approach We use mixed methods, combining quantitative examination of surveys with 180 survivors with qualitative findings from semi-structured face-to-face interviews with 50 survivors. Participants were 2–25 years after transplantation. Quantitative data were analyzed using statistical modeling; qualitative data were analyzed using thematic coding. Findings A quantitative examination indicates that compared to men, women report greater posttraumatic growth and more positive impacts of cancer despite having lower physical health. These gender differences are robust even after controlling for physical and emotional well-being, life satisfaction, and social support. Qualitative findings from in-depth interviews show that gender norms and expectations about masculinity and femininity shape how individuals experience illness and perform the role of patient and survivor. Expectations about being a good patient and survivor are more aligned with expectations about femininity and tend to conflict with expectations about masculinity. Gender norms discourage men from reporting personal growth from cancer and encourage women to overemphasize the positive aspects of having had cancer. Research limitations/implications This study was conducted two or more years after treatment had ended; therefore, potential for recall bias existed. Nevertheless, the findings suggest that viewing cancer as transformative is part of a gender performance that limits opportunities for individuals to experience and express a diverse range of reactions which, at times, increases the emotional burden on individuals. Originality/value By combining survey data with in-depth interviews, the study offers new insights into the causes of gender differences in the reporting of patient outcomes after illness.
创伤后的成长:癌症和长期存活经历中的性别差异
摘要目的本研究探讨了性别对癌症治疗体验的影响,并对接受血液或骨髓移植治疗淋巴瘤的个体创伤后生长的性别差异提出了新的解释。方法/方法我们使用混合方法,将对180名幸存者的调查的定量检查与对50名幸存者的半结构化面对面访谈的定性结果相结合。参与者在移植后2-25年。使用统计模型对定量数据进行分析;使用主题编码对定性数据进行分析。研究结果定量检查表明,与男性相比,尽管癌症的身体健康状况较低,但女性的创伤后成长更大,受其影响更积极。即使在控制了身体和情感健康、生活满意度和社会支持之后,这些性别差异也很明显。深度访谈的定性结果表明,性别规范和对男性气质和女性气质的期望决定了个人如何经历疾病以及如何扮演患者和幸存者的角色。对成为一名优秀患者和幸存者的期望与对女性气质的期望更一致,并且往往与对男性气质的期望相冲突。性别规范不鼓励男性报告癌症导致的个人成长,并鼓励女性过分强调患癌症的积极方面。研究局限性/影响本研究是在治疗结束两年或两年以上后进行的;因此,存在回忆偏差的可能性。尽管如此,研究结果表明,将癌症视为变革性的是性别表现的一部分,这限制了个人体验和表达各种反应的机会,有时会增加个人的情绪负担。独创性/价值通过将调查数据与深入访谈相结合,该研究为患者患病后报告结果中性别差异的原因提供了新的见解。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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