Improving community and healthcare services for young adults living with cancer: Suggestions from a multiple stakeholder workshop.

Canadian Oncology Nursing Journal Pub Date : 2022-10-01 eCollection Date: 2022-01-01 DOI:10.5737/23688076324484

Karine Bilodeau, Benedicta Hartono, Virginia Lee, Nathalie Folch, Danielle Charpentier, Marie-France Vachon, Marie-Pascale Pomey, Serge Sultan, Billy Vinette, Ali El-Akhras

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Abstract

Background and objectives: Despite the availability of healthcare and community services dedicated to cancer survivors, these remain underutilized by young adults living with cancer (YAC; aged 18-39). A workshop was organized in Montréal, Canada, to identify the needs of YAC during their post-treatment transition period and explore existing services dedicated to YAC.

Methods: We recruited seventeen stakeholders (N = 17), including seven YAC, to participate in a one-day workshop to consult about best approaches and practices to meet the needs of YAC, post-treatment. All discussions were transcribed, and a thematic qualitative analysis was performed.

Results: Two main findings were identified: differences and similarities among stakeholders about perceptions of post-treatment needs; and suggestions to meet YAC needs following treatment.

Conclusions: Results demonstrate the importance of collaboration among multiple stakeholders, including YAC, when designing services for YAC. Results include suggestions to improve services available through community or healthcare centres.

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改善癌症年轻人的社区和医疗保健服务：多方利益相关者研讨会的建议

背景和目标：尽管有专门为癌症幸存者提供的医疗保健和社区服务，但癌症年轻人（YAC；18-39岁）仍然没有充分利用这些服务。在加拿大蒙特利尔组织了一次研讨会，以确定YAC在治疗后过渡期的需求，并探索专门为YAC提供的现有服务。方法：我们招募了17名利益相关者（N=17），包括7名YAC，参加为期一天的研讨会，就满足YAC治疗后需求的最佳方法和实践进行咨询。所有讨论都被转录下来，并进行了主题定性分析。结果：确定了两个主要发现：利益相关者对治疗后需求认知的差异和相似性；以及满足YAC治疗后需求的建议。结论：研究结果表明，在为YAC设计服务时，包括YAC在内的多个利益相关者之间合作的重要性。结果包括建议改善通过社区或医疗保健中心提供的服务。关键词：患者参与、社区参与、存活率、年轻人、癌症、医疗保健服务

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来源期刊

Canadian Oncology Nursing Journal

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期刊介绍： The Canadian Oncology Nursing Journal is published quarterly in the Winter, Spring, Summer and Fall. The CONJ is the only Canadian publication in cancer nursing. It is a bilingual, peer-reviewed journal dedicated to the interests of the professional nurse who provides care to patients with cancer and their families. The journal endeavours to publish timely papers, promote the image of the nurse involved in cancer care, stimulate nursing issues in oncology nursing and encourage nurses to publish in national media.