Local Data Spaces: Leveraging trusted research environments for secure location-based policy research in the age of coronavirus disease-2019

IF 1.8 Q3 PUBLIC ADMINISTRATION
Data & policy Pub Date : 2023-06-15 DOI:10.1017/dap.2023.14
Jacob L. Macdonald, Mark Green, M. Gibin, Simon Leech, A. Singleton, Paul Longely
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引用次数: 1

Abstract

Abstract This work explores the use of Trusted Research Environments for the secure analysis of sensitive, record-level data on local coronavirus disease-2019 (COVID-19) inequalities and economic vulnerabilities. The Local Data Spaces (LDS) project was a targeted rapid response and cross-disciplinary collaborative initiative using the Office for National Statistics’ Secure Research Service for localized comparison and analysis of health and economic outcomes over the course of the COVID-19 pandemic. Embedded researchers worked on co-producing a range of locally focused insights and reports built on secure secondary data and made appropriately open and available to the public and all local stakeholders for wider use. With secure infrastructure and overall data governance practices in place, accredited researchers were able to access a wealth of detailed data and resources to facilitate more targeted local policy analysis. Working with data within such infrastructure as part of a larger research project involved advanced planning and coordination to be efficient. As new and novel granular data resources become securely available (e.g., record-level administrative digital health records or consumer data), a range of local policy insights can be gained across issues of public health or local economic vitality. Many of these new forms of data however often come with a large degree of sensitivity around issues of personal identifiability and how the data is used for public-facing research and require secure and responsible use. Learning to work appropriately with secure data and research environments can open up many avenues for collaboration and analysis.
本地数据空间:在2019冠状病毒病时代利用可信的研究环境进行安全的基于位置的政策研究
本研究探讨了使用可信研究环境对当地冠状病毒病-2019 (COVID-19)不平等和经济脆弱性的敏感、记录级数据进行安全分析。本地数据空间(LDS)项目是一项有针对性的快速反应和跨学科合作倡议,利用国家统计局的安全研究服务,对2019冠状病毒病大流行期间的卫生和经济成果进行本地化比较和分析。嵌入式研究人员致力于共同制作一系列以当地为重点的见解和报告,这些见解和报告建立在安全的二手数据基础上,并适当地向公众和所有当地利益相关者开放,以供更广泛地使用。有了安全的基础设施和全面的数据治理实践,经过认证的研究人员能够访问大量详细的数据和资源,以促进更有针对性的地方政策分析。作为大型研究项目的一部分,在这样的基础设施中处理数据需要进行先进的规划和协调,以提高效率。随着新的和新颖的细粒度数据资源变得安全可用(例如,记录级行政数字健康记录或消费者数据),可以在公共卫生或地方经济活力问题上获得一系列地方政策见解。然而,许多这些新形式的数据往往带有很大程度的敏感性,涉及个人身份问题,以及如何将数据用于面向公众的研究,需要安全和负责任的使用。学习使用安全的数据和研究环境可以为协作和分析开辟许多途径。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
3.10
自引率
0.00%
发文量
0
审稿时长
12 weeks
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