Vincer EMO Project: Physical Activity for Haemophilic Patients. How We Faced Up SARS COV2 Pandemic

Valeri F, Borchiellini A, D. C., Bardetta M, S. C, Merli P, Galizia M, Agostino S, Cunsolo N, Maffia M, Zanon F, Bruno B, Massazza G
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Abstract

The SARS COVID pandemic has negatively impacted health care activities in the entire world, both in emergency and ordinary inpatient and outpatient regimes. Rehabilitation has also suffered a heavy penalty which has not spared research projects in specific sectors. The VINCEREMO project stems from the need to objectively evaluate the benefits of a regular personalized physical activity program on musculoskeletal health in patients with severe haemophilia A and B. These patients present in a high percentage of important functional limitations and reduction of trophism and muscle strength due to the consequences of haemophilic arthropathy. Multi-district impairments in addition with the high risk of bleeding hinder the performance of common recreational and sports activities, resulting in social isolation of patients, especially in childhood and youth age. Even if the SARS COVID pandemic interrupted the various rehabilitation activities in the expected mode of the project, we were also able to continue the training course thanks to personalized tele-rehabilitation programs, who supported patients during the lockdown period, maintaining good adherence to therapeutic proposals. The preliminary results of the controls at the end of the reference period showed positive changes in the outcome indicators.
Vincer EMO项目:血友病患者的体育活动。我们如何面对严重急性呼吸系统综合征冠状病毒2型疫情
严重急性呼吸系统综合征新冠肺炎疫情对全世界的医疗保健活动产生了负面影响,包括急诊、普通住院和门诊。康复也受到了沉重的惩罚,这也未能放过特定部门的研究项目。VINCEREMO项目源于客观评估定期个性化体育活动计划对严重血友病a和B患者肌肉骨骼健康的益处的需要。由于血友病关节病的后果,这些患者存在很大比例的重要功能限制和营养不良和肌肉力量的减少。多地区的损伤加上出血的高风险,阻碍了常见的娱乐和体育活动的进行,导致患者的社会孤立,尤其是在儿童和青少年时期。即使严重急性呼吸系统综合征新冠肺炎疫情以预期的项目模式中断了各种康复活动,由于个性化的远程康复计划,我们也能够继续培训课程,他们在封锁期间为患者提供支持,并保持了对治疗建议的良好遵守。对照组在参考期结束时的初步结果显示,结果指标发生了积极变化。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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