Supporting spiritual health in dementia using the WELLHEAD Toolkit: A ‘story-tale’ from a person with logopenic aphasia

Abstract

ABSTRACT Little is known about the spirituality of people with logopenic aphasia (language-led dementia), including assessment and support. This article presents a single case study from a case series of ten people with various aphasia-types and different religious backgrounds who were recruited after discharge from speech and language therapy (SLT). Based on work with ‘Mr Grey’, it illustrates the use of the ‘WELLHEAD Toolkit’ for assessing and supporting spiritual health. A group of people with aphasia and diverse backgrounds co-produced the resources and steered the research. The Toolkit provides communication support and structure for eliciting interviews about ‘meaning and purpose’ in life. It enables religiously neutral non-judgmental listening and facilitates reflection using Picture and Word Resources, incorporating self-scores, an agreed summary, and goal-setting. Sessions were videoed along with a feedback interview. Participants’ reflections, measures, and verification were integral to the findings from the case series. Findings were analysed via systematic interpretive thematic analysis, verified by an independent researcher. Key themes in Mr Grey’s case are presented in narrative form to respect his own words, interpreted and verified for meaning, within his search for synthesis of his fragmented story. His story-telling brought him catharsis concerning relationships, religious beliefs and sense of self, whilst helping him to frame future goals. Follow-up confirmed the value of enabling chaplaincy referral as a result of the interviews. This helped him towards resolving historical grief before further language deterioration. Limitations and potential future applications of the WELLHEAD Toolkit are discussed.