Lived Experiences of Parents with Children Diagnosed with Cancer in Trinidad: Challenges and Coping Strategies

Abstract

Aim: The aim of this study is to explore the lived experiences of parents pertaining to how cancer in their family affected their lives. In particular the study detailed the participants’ challenges and the strategies they adopted in dealing with the challenges. Methodology: An exploratory phenomenology method was used to guide the study. The participants were selected from the Paediatric Oncology Clinic at The Wendy Fitzwilliam’s Paediatric Hospital. Triangulation of different strategies namely, a focus group interview and four key informant interviews were utilized to collect data from ten parents. The data was audiotaped, transcribed and organized into codes and themes. Results: In the main, findings revealed three main themes: reliance on spirituality to cope, psychosocial challenges, and social support system. This study revealed that the lived experiences of parents who care for their children diagnosed with Cancer, are like a never-ending struggle. Discussion: Regardless of the substantial progress in the treatment of Cancer, childhood Cancer is still emotionally, physically, and psychologically challenging for parents and nurses. This was discussed vis a vis literature. Recommendation: The themes highlighted offer opportunities for additional qualitative and quantitative research in the field of oncology and its impact on Trinidadian parents and the Trinidad family system and dynamics. However, further research is needed from the nursing perspective to focus on paediatric oncology.