A phenomenological content analysis of online support seeking by siblings of people with autism

Abstract

ABSTRACT With the sharp increase in diagnosis rates of autism spectrum disorder, more family members are caring for and being raised with individuals with autism. Although research has examined parents’ experiences of raising a child with autism, more knowledge is needed regarding neuro-typical siblings’ experiences. One way to understand siblings’ experiences is to hear their own recollections as shared through online peer forums. The purpose of this phenomenological content analysis was to understand the unfiltered experiences of neuro-typical adults who grew up with a sibling with autism spectrum disorder as they sought support online. Secondary analysis of online blog posts generated four themes: Unique family relationships; Complex spectrum of emotional experiences; Autism influencing life trajectories; A spectrum of coping strategies. Results provide useful implications for professionals working with these families and for researchers studying autism.