Evaluation of Pairing Mobile Health with Simulation Technology to Assist Sickle Cell Caregivers

Abstract

Introduction: Sickle Cell disease (SCD) affects approximately 100,00 Americans and occurs in about one in every 365 black or African American births.  SCD caregivers could utilize health technology such as mHealth to assist them with appointment reminders, medication management, education, and pain management as it relates to better managing this disease process.   Methods: A mixed-methods approach was utilized to explore the perceived influential factors that impact the caregivers’ ability to care for the children with SCD and utilize mHealth and simulation. A 33-question survey was administered which included questions on: demographics, SCD, mHealth and simulation, General Self-Efficacy, Adult Hope, and four opened-ended questions. Results: In total, 36 SCD caregivers completed the survey and three of them provided an additional interview. Sixty nine percent of the caregivers were mothers (n = 25) of the children with SCD and all the caregivers were African American. Self-Efficacy (p=.568) and Adult Hope scores (p=.762) were not a predictor for willingness to use mHealth or simulation.    Conclusions: SCD caregivers are using some forms of technology to help them however an all-inclusive (one-stop location) mHealth app along with simulation training would allow these caregivers to better manage their patient’s/loved ones SCD.