Quality of life in sarcoidosis.

IF 7.9 1区医学 Q1 IMMUNOLOGY

Journal of autoimmunity Pub Date : 2024-12-01 Epub Date: 2023-10-08 DOI:10.1016/j.jaut.2023.103123

Catharina C Moor, Ogugua Ndili Obi, Vivienne Kahlmann, Katharina Buschulte, Marlies S Wijsenbeek

引用次数: 0

Abstract

Having sarcoidosis often has a major impact on quality of life of patients and their families. Improving quality of life is prioritized as most important treatment aim by many patients with sarcoidosis, but current evidence and treatment options are limited. In this narrative review, we describe the impact of sarcoidosis on various aspects of daily life, evaluate determinants of health-related quality of life (HRQoL), and provide an overview of the different patient-reported outcome measures to assess HRQoL in sarcoidosis. Moreover, we review the current evidence for pharmacological and non-pharmacological interventions to improve quality of life for people with sarcoidosis.

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结节病患者的生活质量。

结节病通常会对患者及其家人的生活质量产生重大影响。提高生活质量是许多结节病患者最重要的治疗目标，但目前的证据和治疗选择有限。在这篇叙述性综述中，我们描述了结节病对日常生活各个方面的影响，评估了与健康相关的生活质量（HRQoL）的决定因素，并概述了评估结节病HRQoL的不同患者报告的结果指标。此外，我们回顾了目前药物和非药物干预措施提高结节病患者生活质量的证据。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of autoimmunity 医学-免疫学

CiteScore

27.90

自引率

1.60%

发文量

117

审稿时长

17 days

期刊介绍： The Journal of Autoimmunity serves as the primary publication for research on various facets of autoimmunity. These include topics such as the mechanism of self-recognition, regulation of autoimmune responses, experimental autoimmune diseases, diagnostic tests for autoantibodies, as well as the epidemiology, pathophysiology, and treatment of autoimmune diseases. While the journal covers a wide range of subjects, it emphasizes papers exploring the genetic, molecular biology, and cellular aspects of the field. The Journal of Translational Autoimmunity, on the other hand, is a subsidiary journal of the Journal of Autoimmunity. It focuses specifically on translating scientific discoveries in autoimmunity into clinical applications and practical solutions. By highlighting research that bridges the gap between basic science and clinical practice, the Journal of Translational Autoimmunity aims to advance the understanding and treatment of autoimmune diseases.