Sharing Decisions When Withdrawing a Technology Is Not the Same as Withholding It.

Abstract

00001396. Kukora, S. K., and R. D. Boss. 2018. Values-based shared decision-making in the antenatal period. Seminars in Fetal & Neonatal Medicine 23 (1):17–24. doi:10.1016/j. siny.2017.09.003. Meadow, W., X. Meadow, R. R. Tanz, J. Lagatta, and J. Lantos. 2011. The value of a trial of therapy–football as a “proof-of-concept.” Acta Paediatrica 100 (2):167–9. doi: 10.1111/j.1651-2227.2010.02113.x. Roscigno, C. I., T. A. Savage, K. Kavanaugh, T. T. Moro, S. J. Kilpatrick, H. T. Strassner, W. A. Grobman, and R. E. Kimura. 2012. Divergent views of hope influencing communications between parents and hospital providers. Qualitative Health Research 22 (9):1232–46. doi:10.1177/ 1049732312449210. Rysavy, M. A., L. Li, E. F. Bell, A. Das, S. R. Hintz, B. J. Stoll, B. R. Vohr, W. A. Carlo, S. Shankaran, M. C. Walsh, et al. 2015. Between-hospital variation in treatment and outcomes in extremely preterm infants. The New England Journal of Medicine 372 (19):1801–11. doi: 10.1056/NEJMoa1410689. Saigal, S.,. B. Stoskopf, J. Pinelli, D. Streiner, L. Hoult, N. Paneth, and J. Goddeeris. 2006. Self-perceived healthrelated quality of life of former extremely low birth weight infants at young adulthood. Pediatrics 118 (3): 1140–8. doi:10.1542/peds.2006-0119. Syltern, J., L. Ursin, B. Solberg, and R. Støen. 2022. Postponed withholding: Balanced decision-making at the margins of viability. The American Journal of Bioethics 22 (11):15–26. doi:10.1080/15265161.2021.1925777. Tyson, J. E., N. A. Parikh, J. Langer, C. Green, and R. D. Higgins. 2008. Intensive care for extreme prematurity–moving beyond gestational age. The New England Journal of Medicine 358 (16):1672–81. doi:10. 1056/NEJMoa073059. Zupancic, J. A. F., H. Kirpalani, J. Barrett, S. Stewart, A. Gafni, D. Streiner, M. L. Beecroft, and P. Smith. 2002. Characterising doctor-parent communication in counselling for impending preterm delivery. Archives of Disease in Childhood-Fetal and Neonatal Edition 87 (2):F113–117.