A cluster analysis to explore the burden of primary caregivers of children with cancer in Oman

IF 1.2 4区医学 Q3 NURSING

Journal for Specialists in Pediatric Nursing Pub Date : 2022-06-21 DOI:10.1111/jspn.12389

Moon Fai Chan, Amal Mohammed Al-Dhawyani, Karima Al Hinai, Mohammed Al-Azri

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引用次数: 1

Abstract

Purpose

Few studies have sought to evaluate the risk burden of primary caregivers, particularly in Oman. This study aimed to explore whether different risk patterns of caregiver burden exist among the primary caregivers of Omani children with leukemia.

Design and Methods

A cross-sectional study was conducted between May and November 2020. A total of 101 primary caregivers of children with leukemia were recruited from a public hospital in Oman. The Caregiver Burden Inventory (CBI) was used to assess caregiver burden.

Results

A two-step cluster analysis indicated that the cohort was not homogeneous (silhouette value: 1.41). Caregivers in Cluster 1 (n = 42; 41.6%) were relatively older, less educated, and had a higher caregiving burden (mean CBI score: 37.7 ± 19.9). In contrast, caregivers in Cluster 2 (n = 59; 58.4%) were younger, more highly educated, and had a moderate caregiving burden (mean CBI score: 26.3 ± 13.6). As such, Clusters 1 and 2 were characterized as the “high-risk” and “moderate-risk” burden groups, respectively.

Practice Implications

This study highlights the need for a policy draft to target and reduce the caregiver burden in Oman, Nursing professionals should seek to develop and implement customized care depending on the caregiver risk burden, including additional financial, psychological, and physical support. They should seek to stratify caregivers by risk burden as some groups may require additional support. However, in light of recent precautionary measures due to the current pandemic situation, such services will have to be provided online or via telephone instead of in person for the foreseeable future.

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聚类分析以探讨阿曼癌症儿童主要照顾者的负担

目的很少有研究试图评估初级护理人员的风险负担，特别是在阿曼。本研究旨在探讨阿曼白血病儿童的主要照顾者之间是否存在不同的照顾者负担风险模式。设计与方法横断面研究于2020年5月至11月进行。从阿曼一家公立医院招募了101名白血病儿童的主要护理人员。采用照顾者负担量表(CBI)评估照顾者负担。结果两步聚类分析显示队列不均匀(剪影值:1.41)。第1组护理人员(n = 42;41.6%)年龄相对较大，受教育程度较低，照顾负担较高(平均CBI评分:37.7±19.9)。相比之下，集群2中的护理人员(n = 59;58.4%)，年龄较小，受教育程度较高，照顾负担适中(平均CBI评分:26.3±13.6)。因此，第1组和第2组分别被定性为“高风险”和“中等风险”负担组。本研究强调了制定政策草案的必要性，以针对并减轻阿曼的护理人员负担。护理专业人员应根据护理人员的风险负担寻求制定和实施定制护理，包括额外的经济、心理和身体支持。他们应设法按风险负担对护理人员进行分层，因为有些群体可能需要额外的支持。然而，鉴于最近因当前大流行情况而采取的预防措施，在可预见的将来，此类服务将不得不通过网络或电话提供，而不是亲自提供。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal for Specialists in Pediatric Nursing 医学-护理

CiteScore

2.50

自引率

7.70%

发文量

审稿时长

>12 weeks

期刊介绍： Linking science and practice by publishing evidence-based information on pediatric nursing and answering the question, ''How might this information affect nursing practice?'' The Journal for Specialists in Pediatric Nursing (JSPN) is the international evidence-based practice journal for nurses who specialize in the care of children and families. JSPN bridges the gap between research and practice by publishing peer-reviewed reliable, clinically relevant, and readily applicable evidence. The journal integrates the best evidence with pediatric nurses'' passion for achieving the best outcomes. The journal values interdisciplinary perspectives and publishes a wide variety of peer-reviewed papers on clinically relevant topics.