Outcomes Important to Patients Diagnosed with Both COPD and Sleep Apnea: Findings from the O2VERLAP Study Focus Groups.

IF 2.3 4区 医学 Q2 RESPIRATORY SYSTEM
Jamie Sullivan, Cara Pasquale, Bill Clark, Elisha Malanga, Sergio Martinez, David Mannino, Carl Stepnowsky
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引用次数: 3

Abstract

Introduction: Few studies have asked chronic obstructive pulmonary disease (COPD) -obstructive sleep apnea (OSA) overlap syndrome patients what outcomes of continuous positive airway pressure (CPAP) therapy are important to them, while also considering their self-reported CPAP adherence barriers and facilitators. This study conducted a series of focus groups to learn about those issues with the goal of applying these findings to the design of a larger Patient-Centered Outcomes Research Institute-funded scientific study, the O2VERLAP Study.

Methods: People previously diagnosed with both COPD and OSA, who were current or recent past users of the standard therapy for each condition (i.e., supplemental oxygen and CPAP, respectively), were included. Three qualitative focus groups were run using different communication modalities: (1) teleconference (audio only), (2) in-person, and (3) web-based.

Results: The focus groups included a total of 17 participants. The telephone and online focus groups resulted in more relevant and content-rich transcripts, while the in-person focus groups had far fewer excerpts able to be coded. Participants were most concerned about mask fit and comfort. Other key factors affecting CPAP use included nasal dryness and issues concerning insurance. The most important outcome to patients was daytime functioning.

Discussion: This work found that telephone and web-based qualitative focus groups resulted in greater topical discussions than in-person focus groups, likely due to the customary socializing that occurs in-person. The study identified: (1) CPAP use barriers and facilitators that helped guide intervention development for the larger study and, (2) daytime functioning as the most important outcome for patients.

对诊断为COPD和睡眠呼吸暂停的患者重要的结局:来自O2VERLAP研究焦点小组的发现
引言:很少有研究询问慢性阻塞性肺疾病(COPD) -阻塞性睡眠呼吸暂停(OSA)重叠综合征患者持续气道正压(CPAP)治疗的哪些结果对他们重要,同时也考虑他们自我报告的CPAP依从性障碍和促进因素。这项研究进行了一系列的焦点小组来了解这些问题,目的是将这些发现应用于一个更大的以患者为中心的结果研究所资助的科学研究的设计,O2VERLAP研究。方法:纳入了先前诊断为COPD和OSA的患者,这些患者目前或最近曾经使用过每种疾病的标准治疗(即分别补充氧气和CPAP)。三个定性焦点小组使用不同的沟通方式:(1)电话会议(仅音频),(2)面对面,(3)基于网络。结果:焦点小组共包括17名参与者。电话和在线焦点小组产生了更相关和内容丰富的文本,而面对面的焦点小组可以编码的摘录要少得多。参与者最关心的是口罩的贴合度和舒适度。影响CPAP使用的其他关键因素包括鼻腔干燥和保险问题。对患者来说,最重要的结果是白天的功能。讨论:这项研究发现,电话和基于网络的定性焦点小组比面对面的焦点小组产生了更多的主题讨论,可能是由于面对面的习惯性社交活动。该研究确定:(1)CPAP使用障碍和促进因素有助于指导更大规模研究的干预发展;(2)日间功能是患者最重要的结果。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
3.70
自引率
8.30%
发文量
45
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