Meeting AT needs in humanitarian crises: The current state of provision.

Golnaz Whittaker, Gavin Adam Wood, Giulia Oggero, Maria Kett, Kirstin Lange
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Abstract

Humanitarian coordination systems increasingly recognize and aim to respond to the needs of people with disabilities within populations affected by crises, spurred on by the UN Convention on the Rights of Persons with Disabilities (CRPD) which was adopted in 2006. Many agencies state their aim to meet the requirements of the CRPD using a "twin track" approach: ensuring the inclusion of people with disabilities in mainstream provision, alongside targeted support for their needs, which may include the need for Assistive Technology (AT). However, there is very little evidence of AT provision in humanitarian settings, which is a specific and urgent need for many people including the elderly and people with disabilities, and an implicit requirement of Article 11 of the CRPD and World Health Assembly resolution on improving access to assistive technology. There is also little evidence of effective mechanisms for AT provision in humanitarian settings. This is despite high and growing levels of unmet AT need in crises, and despite the legally binding requirement in the CRPD to provide AT for those who need it. AT provision faces unique challenges in humanitarian settings. This paper discusses the evidence available in the literature for the scale and quality of AT provision interventions in crises, and what is known about the challenges and facilitators of provision. We conducted a search of the academic literature and retained literature that reported on any form of AT provision following crisis, where international humanitarian response was in place, published in English between January 2010 and June 2020. We found very few examples in that academic literature of systematic and coordinated AT provision at the acute stage of crisis, and even less in the preparedness and post-acute stages. However, it is difficult to assess whether this is the result of insufficient academic attention or reflects a lack of provision. The small body of academic literature that describes AT provision in humanitarian settings paints a picture of small-scale provision, specialized to single types of impairments, and delivered by predominantly by NGOs. We also conducted a search of the gray literature, using the same inclusion criteria, in two countries: Afghanistan and South Sudan (case studies forthcoming). This gray literature provided supplementary evidence of the types of AT providers and AT provision available in those protracted crises. There are very few examples of how AT services can be scaled up (from a very low baseline) and maintained sustainably within a strengthened health system. The literature also describes more examples of provision of assistive products for mobility over assistive products for other impairments. If the paucity of literature on AT provision in humanitarian settings is a reflection of the scale of provision, this implies a deficiency in humanitarian response when it comes to providing people with AT needs with the essential products and services to which they have a right, and which will enable their access to basic, life-saving assistance. We conclude by providing recommendations for urgent actions that the AT and humanitarian community must take to fill this critical gap in the provision of essential products and services for a potentially marginalized and excluded group.

在人道主义危机中满足援助物资的需求:目前的供应状况。
在2006年通过的《联合国残疾人权利公约》(CRPD)的推动下,人道主义协调系统越来越多地认识到并致力于响应受危机影响人群中残疾人的需求。许多机构表示,他们的目标是通过“双轨”方法来满足《残疾人权利公约》的要求:确保将残疾人纳入主流服务,同时有针对性地支持他们的需求,其中可能包括对辅助技术(AT)的需求。然而,在人道主义环境中提供辅助技术的证据很少,这是包括老年人和残疾人在内的许多人的具体和迫切需要,也是《残疾人权利公约》第11条和世界卫生大会关于改善获得辅助技术的决议的隐含要求。也几乎没有证据表明在人道主义环境中提供反坦克武器的有效机制。尽管在危机中,未得到满足的援助需求很高,而且还在不断增加,尽管《残疾人权利公约》有法律约束力要求为有需要的人提供援助。在人道主义环境中,提供反坦克武器面临着独特的挑战。本文讨论了文献中关于危机中提供辅助医疗干预的规模和质量的现有证据,以及关于提供辅助医疗干预的挑战和促进因素的已知情况。我们检索了2010年1月至2020年6月期间发表的英文文献和留存文献,这些文献报道了危机后国际人道主义反应到位的任何形式的紧急救援措施。我们在学术文献中发现,在危机的急性阶段提供系统和协调的紧急援助的例子很少,在准备和急性后阶段就更少了。然而,很难评估这是学术关注不足的结果,还是反映出缺乏提供。一小部分学术文献描述了在人道主义环境中提供辅助治疗,描绘了一幅小规模提供的图景,专门针对单一类型的损伤,主要由非政府组织提供。我们还在两个国家(阿富汗和南苏丹)使用相同的纳入标准对灰色文献进行了检索(即将进行案例研究)。这些灰色文献提供了补充证据,证明了在那些旷日持久的危机中,急救提供者和急救提供的类型。在得到加强的卫生系统内,如何扩大(从非常低的基线开始)和可持续地维持辅助医疗服务的例子很少。文献还描述了为行动提供辅助产品而不是为其他障碍提供辅助产品的更多例子。如果关于在人道主义环境中提供反转录药物的文献的缺乏反映了提供的规模,这意味着在向有反转录药物需求的人提供他们有权获得的基本产品和服务,并使他们能够获得基本的、挽救生命的援助方面,人道主义反应存在不足。最后,我们就紧急行动提出建议,援助机构和人道主义界必须采取这些行动,以填补在为可能被边缘化和被排斥的群体提供基本产品和服务方面的这一重大缺口。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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