The Role of Telehealth Services in Children with Cystic Fibrosis During Coronavirus Disease 2019 Outbreak.

Ömer Faruk Beşer, Ebru Pelin Uğur Karaboğa, Evrim Hepkaya, Ayşe Ayzıt Kılınç Sakallı, Ahsen Dönmez Türkmen, Tuğçe Damla Dilek, Haluk Çokuğraş, Fügen Çullu Çokuğraş
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引用次数: 3

Abstract

Objectives:This study aimed to monitor the health and nutritional status of pediatric cystic fibrosis (CF) patients via telehealth services during the novel coronavirus disease 2019 (COVID-19). Additional aims were to determine the level of anxiety in the patients and their caregivers and to determine the COVID-19 transmission status among CF patients.Materials and Methods:The CF team supported the patients via remote contact. During telehealth services interviews, in addition to obtaining information about the patients' anthropometric measurements, health status, and CF-related complaints, the State-Trait Anxiety Inventory (STAI) was administered to the patients and controls. The Hospital Anxiety and Depression Scale (HAD) was administered to their caregivers.Results:The study included 144 pediatric CF patients (74 males and 70 females). Mean age of the patients was 8.9 years. In all, 42 (29.2%) of the patients were tested for COVID-19, of which 4 were positive. The mean STAI score was significantly lower in the patient group than in the control group (p < 0.001). The mean HAD anxiety score was significantly higher in the caregivers of the CF patients, compared to the caregivers of the controls (p = 0.005). In addition, the mean HAD depression score was significantly higher in the caregivers of the CF patients (p < 0.001).Conclusions:Telehealth is an innovative method for providing health care services while maintaining social distance and avoiding the risk of exposure and spread of COVID-19. Telehealth services reduce patient and parental anxiety and increase the level of confidence in managing CF-related complications.

2019冠状病毒病爆发期间远程医疗服务在囊性纤维化儿童中的作用
目的:本研究旨在通过远程医疗服务监测2019年新型冠状病毒病(COVID-19)期间儿科囊性纤维化(CF)患者的健康和营养状况。其他目的是确定患者及其护理人员的焦虑水平,并确定CF患者中COVID-19的传播状况。材料和方法:CF团队通过远程联系支持患者。在远程医疗服务访谈期间,除了获取有关患者人体测量、健康状况和cf相关投诉的信息外,还对患者和对照组进行了状态-特质焦虑量表(STAI)。医院焦虑和抑郁量表(HAD)被给予他们的照顾者。结果:本研究纳入144例儿童CF患者(男性74例,女性70例)。患者平均年龄8.9岁。共有42人(29.2%)接受了新冠肺炎检测,其中4人呈阳性。患者组平均STAI评分明显低于对照组(p < 0.001)。CF患者的照顾者的平均HAD焦虑评分显著高于对照组的照顾者(p = 0.005)。此外,CF患者的照护者的平均HAD抑郁评分显著高于照护者(p < 0.001)。结论:远程医疗是在提供医疗服务的同时保持社会距离,避免COVID-19暴露和传播风险的创新方法。远程保健服务减少了患者和家长的焦虑,提高了管理cf相关并发症的信心水平。
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