Improvement of Planning Abilities in Adults with Prader-Willi Syndrome: A Randomized Controlled Trial.

IF 1.1 4区医学 Q4 CLINICAL NEUROLOGY

Developmental Neurorehabilitation Pub Date : 2021-10-01 Epub Date: 2021-06-29 DOI:10.1080/17518423.2021.1915405

Séverine Estival, Virginie Laurier, Fabien Mourre, Virginie Postal

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引用次数: 1

Abstract

Prader-Willi Syndrome (PWS) is a neurodevelopmental genetic disorder with executive deficits. Planning is one of the impaired executive functions implied in the regulation of behavior and everyday actions. We aimed to explore the feasibility and the effectiveness of a metacognitive strategy training designed to improve planning in adults with PWS using a double-blind between-group (training versus usual care) randomized controlled trial, with computerized tests and paper-pencil ecological outcome measures targeting planning, other executive functions, and achievement of personalized goal. Results showed better performances in several executive tasks and in achievement of personalized goals after both interventions, but better improvement for the experimental group (n = 27) compared to control (n = 26) only on the task assessing planning abilities. Interviews with occupational therapists demonstrated the feasibility of this training with this population. Despite a small number of sessions, the metacognitive strategy training showed encouraging results on planning abilities of patients.

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普瑞德-威利综合征成人计划能力的改善:一项随机对照试验。

普瑞德-威利综合征(PWS)是一种神经发育性遗传疾病，伴有执行力缺陷。计划是行为和日常行动的调节中隐含的执行功能受损之一。我们旨在通过双盲组间(训练与常规护理)随机对照试验，探讨旨在改善PWS成人计划的元认知策略训练的可行性和有效性，采用针对计划、其他执行功能和个性化目标实现的计算机测试和纸笔生态结果测量。结果显示，两种干预后，实验组(n = 27)在几个执行任务和实现个性化目标方面的表现更好，但仅在评估计划能力的任务上，实验组(n = 26)比对照组(n = 26)有更好的改善。与职业治疗师的访谈证明了这种培训对这一人群的可行性。元认知策略训练虽然疗程较少，但对患者计划能力的提高效果令人鼓舞。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Developmental Neurorehabilitation CLINICAL NEUROLOGY-PEDIATRICS

CiteScore

3.10

自引率

0.00%

发文量

审稿时长

6-12 weeks

期刊介绍： Developmental Neurorehabilitation aims to enhance recovery, rehabilitation and education of people with brain injury, neurological disorders, and other developmental, physical and intellectual disabilities. Although there is an emphasis on childhood, developmental disability can be considered from a lifespan perspective. This perspective acknowledges that development occurs throughout a person’s life and thus a range of impairments or diseases can cause a disability that can affect development at any stage of life.