Gender Transition: Is There a Right to Be Forgotten?

IF 1.8 3区 哲学 Q2 ETHICS
Health Care Analysis Pub Date : 2021-12-01 Epub Date: 2021-05-02 DOI:10.1007/s10728-021-00433-1
Mónica Correia, Guilhermina Rêgo, Rui Nunes
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引用次数: 4

Abstract

The European Union (EU) faced high risks from personal data proliferation to individuals' privacy. Legislation has emerged that seeks to articulate all interests at stake, balancing the need for data flow from EU countries with protecting personal data: the General Data Protection Regulation. One of the mechanisms established by this new law to strengthen the individual's control over their data is the so-called "right to be forgotten", the right to obtain from the controller the erasure of records. In gender transition, this right represents a powerful form of control over personal data, especially health data that may reveal a gender with which they do not identify and reject. Therefore, it is pertinent to discern whether the right to have personal data deleted-in particular, health data-is ethically acceptable in gender transition. Towards addressing the ethical dimensions of the right to be forgotten in this case, this study presents relevant concepts, briefly outlines history, ethics and law of records considering the evolution from paper to electronic format, the main aspects of identity construction and gender identity, and explores the relationship between privacy, data protection/information control and identity projection. Also, it discusses in gender transition the relation between "the right to self-determination", "the right to delete", and "the right to identity and individuality". Conclusions on the ethical admissibility of the 'right to be forgotten' to control gender-affirming information are presented.

性别转换:有被遗忘的权利吗?
欧洲联盟(EU)面临着个人数据激增给个人隐私带来的高风险。立法已经出现,旨在阐明所有利害攸关的利益,平衡来自欧盟国家的数据流动需求与保护个人数据:《通用数据保护条例》(General data Protection Regulation)。这项新法律为加强个人对其数据的控制而建立的机制之一是所谓的“被遗忘权”,即从控制者那里获得删除记录的权利。在性别转换方面,这一权利代表着对个人数据,特别是可能显示他们不认同和拒绝的性别的健康数据的强有力的控制形式。因此,确定删除个人数据,特别是健康数据的权利在性别过渡中在道德上是否可以接受是有意义的。为了解决本案例中被遗忘权的伦理维度,本研究提出了相关概念,简要概述了记录的历史、伦理和法律,考虑到从纸质到电子格式的演变,身份建构和性别认同的主要方面,并探讨了隐私、数据保护/信息控制和身份投射之间的关系。并讨论了性别转型中“自决权”、“删除权”和“身份与个性权”的关系。提出了关于控制性别确认信息的“被遗忘权”的道德可接受性的结论。
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来源期刊
CiteScore
4.20
自引率
0.00%
发文量
3
期刊介绍: Health Care Analysis is a journal that promotes dialogue and debate about conceptual and normative issues related to health and health care, including health systems, healthcare provision, health law, public policy and health, professional health practice, health services organization and decision-making, and health-related education at all levels of clinical medicine, public health and global health. Health Care Analysis seeks to support the conversation between philosophy and policy, in particular illustrating the importance of conceptual and normative analysis to health policy, practice and research. As such, papers accepted for publication are likely to analyse philosophical questions related to health, health care or health policy that focus on one or more of the following: aims or ends, theories, frameworks, concepts, principles, values or ideology. All styles of theoretical analysis are welcome providing that they illuminate conceptual or normative issues and encourage debate between those interested in health, philosophy and policy. Papers must be rigorous, but should strive for accessibility – with care being taken to ensure that their arguments and implications are plain to a broad academic and international audience. In addition to purely theoretical papers, papers grounded in empirical research or case-studies are very welcome so long as they explore the conceptual or normative implications of such work. Authors are encouraged, where possible, to have regard to the social contexts of the issues they are discussing, and all authors should ensure that they indicate the ‘real world’ implications of their work. Health Care Analysis publishes contributions from philosophers, lawyers, social scientists, healthcare educators, healthcare professionals and administrators, and other health-related academics and policy analysts.
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