Quality of life of patients living with psoriasis: a qualitative study.

Q2 Medicine

BMC Dermatology Pub Date : 2020-12-10 DOI:10.1186/s12895-020-00116-9

Silmara Meneguin, Natália Aparecida de Godoy, Camila Fernandes Pollo, Hélio Amante Miot, Cesar de Oliveira

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引用次数: 22

Abstract

Background: Psoriasis is a multifactorial inflammatory disease prevalent in dermatology. We aimed to understand the perceptions of patients living with psoriasis in relation to their quality of life and to identify aspects to improve it.

Methods: This is qualitative research carried out in a dermatology outpatient clinic of the São Paulo State University (UNESP) medical school, Botucatu, Brazil, with 81 psoriasis patients. The interviews were transcribed and analysed using the Discourse of the Collective Subject method (DCS).

Results: Quality of life was linked to well-being, happiness, leisure, good food and financial stability. However, disease symptoms, social and clothing restrictions, impairment of professional activities and the absence of a cure, negatively influenced their perceptions. Suggestions for improvements included an increase of public awareness, stress reduction, disease acceptance and multidisciplinary care.

Conclusion: The meanings of quality of life revealed by the participants are subjective, multidimensional, linked to moments experienced by them and to the health-disease process. Public health policies promoting reduction in social stigma and stress as well as multidisciplinary approaches towards care can contribute to improvements of QoL in psoriasis.

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牛皮癣患者生活质量:一项定性研究。

背景:银屑病是一种多因素炎症性皮肤病。我们的目的是了解牛皮癣患者对生活质量的看法，并确定改善生活质量的方面。方法:在巴西博图卡图圣保罗州立大学(UNESP)医学院皮肤科门诊对81例牛皮癣患者进行定性研究。使用集体主体话语法(DCS)对访谈进行转录和分析。结果:生活质量与幸福、快乐、休闲、美食和经济稳定有关。然而，疾病症状、社交和衣着限制、专业活动受损以及无法治愈，对她们的看法产生了负面影响。改进建议包括提高公众意识、减轻压力、接受疾病和多学科护理。结论:参与者揭示的生活质量的意义是主观的，多维的，与他们所经历的时刻和健康-疾病过程有关。促进减少社会耻辱和压力的公共卫生政策以及多学科治疗方法可有助于改善牛皮癣患者的生活质量。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

BMC Dermatology Medicine-Dermatology

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0.00%

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期刊介绍： BMC Dermatology is an open access journal publishing original peer-reviewed research articles in all aspects of the prevention, diagnosis and management of skin disorders, as well as related molecular genetics, pathophysiology, and epidemiology. BMC Dermatology (ISSN 1471-5945) is indexed/tracked/covered by PubMed, MEDLINE, CAS, EMBASE, Scopus and Google Scholar.